NL-OMON46697已完成不适用
Feeding and Swallowing Problems in Spinal Muscular atrophy A cross-sectional descriptive study to investigate feeding, mastication and swallowing disorders in Dutch patients with Spinal Muscular Atrophy type II en III. - Feeding and Swallowing Problems in SMA.
niversitair Medisch Centrum Utrecht0 个研究点目标入组 30 人开始时间: 待定最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 30
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 2 至 99（—）
入选标准
- •1) a clinical diagnosis of SMA type II or III, and a genetically confirmed homozygous SMN1 deletion;
- •2) patients with complaints of feeding, mastication and/or swallowing problems;
- •3) given oral and written informed consent when *16 years old;
- •4) given oral and written informed consent by the parents or legal representative and the patient in case of patients aged *12 till <16 years old;
- •5) given oral and written informed consent by the parents or legal representative in case of patients < 12 years of age.
排除标准
- •1) Severe SMA, defined as clinical types 0 and I;
- •2) Inability to meet study visits;
- •3) Total tube feeding.
研究者
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