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Clinical Trials/NL-OMON53436
NL-OMON53436
Recruiting
Not Applicable

Psychosocial Distress and Quality of Life in CDKN2A Pathogenic Variant Carriers and their first-degree relatives - PSI-CDKN2A

eids Universitair Medisch Centrum0 sites500 target enrollmentTBD
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ConditionsCDKN2A P16-Leiden100276641000286110016214

Overview

Phase
Not Applicable
Intervention
Not specified
Conditions
CDKN2A P16-Leiden
Sponsor
eids Universitair Medisch Centrum
Enrollment
500
Status
Recruiting
Last Updated
2 years ago
OverviewInvestigatorsEligibility CriteriaOutcomesSimilar Trials

Overview

Brief Summary

No summary available.

Registry
who.int
Start Date
TBD
End Date
TBD
Last Updated
2 years ago
Study Type
Observational non invasive

Investigators

Eligibility Criteria

Inclusion Criteria

  • •\- 18 years or older
  • •\- Written informed consent
  • •\- Proven CDKN2A PV carrier (confirmed by positive genetic test result)
  • •\- CDKN2A risk carrier (50% chance of carrying the PV; genetic status not \[yet]
  • •confirmed by genetic testing)
  • •\- Participation in the LUMC skin and/or pancreatic surveillance program

Exclusion Criteria

  • •Individuals that are not able to read or understand Dutch will be excluded from
  • •participation in this study.

Outcomes

Primary Outcomes

Not specified

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