Advance Care Planning Among Older People From Moroccon Origin in Belgium

Not Applicable

Completed

• Conditions: Advance Medical Directives; Ethnic Minorities; Advance Care Planning; Muslims; Moroccans; Living Will
• Interventions: Other: one to one interview

• Registration Number: NCT04335214
• Lead Sponsor: Universitair Ziekenhuis Brussel

Brief Summary

Advance care planning (ACP) enables individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Research has shown that most Western patients express the need about what ACP entails. Ethnicity creates an important cultural impact on how people look at life and death, so that there is an influence on making decisions about end-of-life care.

The moroccan ethnic group is one of the largest visible non-Western minority groups in Western countries. Studies on how ACP is perceived among patients from moroccon origin are lacking. The objective of this study is exploring the knowledge, experiences, point of views, preferences, attitudes, facilitators and barriers concerning advance care planning of older people from moroccan origin in Belgium. Semi-structured interviews (in the native moroccan/arabic language) will be used.

Detailed Description

Not available

Study Timeline

• Study Start: 2020-04-01
• Study First Submitted: 2020-04-02
• Study First Submitted QC: 2020-04-02
• Study First Posted: 2020-04-06
• Status Verified: 2022-05
• Primary Completion: 2022-12-01
• Study Completion: 2023-03-03
• Last Update Submitted: 2023-05-10
• Last Update Posted: 2023-05-11

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 35

Inclusion Criteria

• People with Moroccan origin who live in Belgium and are older than 65 years and who have also given informed consent to participate in this qualitative interview study

Exclusion Criteria

• Patients who are terminal ill which means having a life-limiting disease with irreversible decline and who are actively dying (actively dying is related to patients with days of survival). (41)
• people who have cognitive impairment

Study & Design

• Study Type: INTERVENTIONAL
• Study Design: SINGLE_GROUP

Arm && Interventions

Group	Intervention	Description
Interview	one to one interview	One to one interview with older people from moroccon origin in Belgium

Primary Outcome Measures

Name	Time	Method
Knowledge, experiences, views, preferences, barriers and facilitators about advance care planning from older people from moroccon origin in Belgium	18 months	This is a qualitative study. We've developed a semi-structured interview guide with the folowing questions: What do you know in relation to advance care planning? Have you yourself ever thought or looked up about your future healthcare? What do you think about advance care planning now for future? What are the advantages and disadvantages? In your opinion, what makes it easier or harder to talk about advance care planning?

Trial Locations

Locations (1)

Faculteit Geneeskunde en Farmacie; 🇧🇪 Brussels, Belgium