Improving Communication With and Building a Stronger Medical Home Among Spanish-speaking Families in the Center for Cancer and Blood Disorders
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 20
- 试验地点
- 1
- 主要终点
- Determine a baseline level of Spanish speaking patient satisfaction of care
研究概览
简要总结
This study will seek to improve communication with Spanish speaking families and patients with Cancer and Blood Disorders.
详细描述
The Principal Investigator seeks to improve communication with Spanish speaking families with the following goals: 1) to increase patient and family sense of inclusion in the medical community, 2) to increase patient and family medical knowledge and understanding, 3) to improve patient adherence with critical medical regimens, and ultimately, 4) to increase equality of comprehensive medical care delivery across the continuum of care including physical and psychosocial domains.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- — 至 22 Years（Child, Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •0 to 22 years of age
- •Diagnosis of leukemia or non-Hodgkin lymphoma
- •Spanish as preferred language for patient, parent or guardian
- •Received or receiving care at the Center for Cancer and Blood Disorders (CCBD)
排除标准
- •Patients without oncologic diagnosis
- •Patients with parents whose language preference is English
- •Patients who received care solely outside of the CCBD
研究组 & 干预措施
Patients treated in CCBD
Patients who are currently receiving therapy at the Center for Cancer and Blood Disorders
干预措施: Interview (Other)
结局指标
主要结局
Determine a baseline level of Spanish speaking patient satisfaction of care
时间窗: 12 months
Understand the patient experience using qualitative interview of Spanish speaking patients and families Determine satisfaction based on open-ended question with unsatisfied to satisfied as markers.
Determine a baseline level of Spanish Speaking family satisfaction of care
时间窗: 12 months
Understand the patient experience using qualitative interview of Spanish speaking patients and families Determine satisfaction based on open-ended question with unsatisfied to satisfied as markers.
Determine effects of language barrier on Spanish speaking patient needs
时间窗: 12 months
Understand the patient experience using qualitative interview of Spanish speaking patients and families. Determine satisfaction based on open-ended question to determine a list or pattern of common patient needs.
Determine the effect of language barrier on barriers to patient care
时间窗: 12 months
Understand the patient experience using qualitative interview of Spanish speaking patients and families. Determine satisfaction based on open-ended question to determine a list or pattern of common barriers to patient care.
Effect of language barrier on efficiency of access to care
时间窗: 12 months
Understand the patient experience using qualitative interview of Spanish speaking patients and families. Determine satisfaction based on open-ended question to determine how quickly patient was able to receive care.
次要结局
- Determine Spanish speaking patient interest in telemedical check-ins during intensive phases of therapy(12 months)
- Determine patient interest in home telemedicine support program(12 months)
- Determine patient interest in home telemedicine support program after discharge(12 months)
- Determine Spanish speaking patient interest in medication assistance during intensive phases of therapy(12 months)
- Determine Spanish speaking patient interest in medical check-ins during maintenance(12 months)
- Determine Spanish speaking patient interest in medication assistance during maintenance(12 months)