The pandemic social and healthcare experiences of adults living with chronic conditions or disabilities who come from migrant and other minoritised ethnic groups

Not Applicable

• Conditions: Pandemic-relevant experiences of living with diagnosed and undiagnosed chronic conditions or disabilities (considering the full range) with a particular focus on racialised/minoritised ethnic groups.; Not Applicable

• Registration Number: ISRCTN49499373
• Lead Sponsor: niversity College London

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2022-06-14
• Last Update Posted: 5 August 2022
• Study Completion: 2022-10-31

Recruitment & Eligibility

• Status: Ongoing
• Sex: All
• Target Recruitment: 3410

Inclusion Criteria

Survey
1. Community dwelling adults living in the UK
2. Aged 18 years or above
3. We have two versions of the survey, one for adults living with chronic conditions/disability or their carer, and one for any other adult

Main interview/research workshops inclusion criteria
1. White British comparators or people of Arab, C/E European, S Asian or sub-Saharan African ancestry, aged 18+ (undocumented, on temporary visas, indefinite leave to remain, British citizenship). Comprising people born outside the UK or whose parents were status in the UK as skilled migration, humanitarian or family streams, the ‘irregular’ or undocumented, on temporary visas, with indefinite leave to remain, or with British citizenship.
2. Any condition/disability, including self-diagnosis, that chronically affects daily activities. We have not defined chronicity using standard definitions, to avoid excluding studies and people that do not fit their tight criteria but who/which may be relevant but in general we mean by this that the condition has lasted for at least 12 weeks and has no defined end-point.

Eligibility criteria for key informant interviews
• Inclusion and exclusion criteria will be determined by our advisory and Co-create workshop members as a result of earlier analyses.

Eligibility criteria for Co-create workshops
• We will seek representation from a cross-section of relevant lay and professional stakeholders; the inclusion criterion will be that participants should be stakeholders in the health and social care of people with any condition/disability from racialised groups.

Eligibility criteria for interventions
• We will try out adaptations of two existing training programmes run by study collaborators, one for community members and one for practitioners, at key sites across the UK for proof-of- concept. We may also evaluate other small interventions that involve expansion or adaptation of existing provision. Inclusion and exclusion criteria will be determined by our advisory and co- create workshop members as a result of earlier analyses.

Exclusion Criteria

Main interview/research workshops
1. Student migrants as likely to have structured educational institution support
2. Residents of detention centres/closed facilities linked to national migration policies (e.g. new asylum- seekers/refugees, displaced or trafficked persons), as complex cases with specific considerations.

Study & Design

• Study Type: Other
• Study Design: Not specified