DRKS00033032已完成不适用
BEAWARE - Survey of patients with selected rare diseases to identify essential and generally valid patient characteristics and relevant symptoms of patients with rare diseases in the emergency department - BEAWARE
Zentrale Notaufnahme und Aufnahmestation Charité - Universitätsmedizin Berlin am Campus Benjamin Franklin0 个研究点目标入组 151 人开始时间: 2023年11月16日最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 151
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 16 Years 至 one（—）
- 性别
- All
入选标准
- •Informed patient consent and, for minors, additional consent from a legal representative.
- •Diagnosis of one of the following rare diseases:
- •- Porphyria
- •- Thrombotic thrombocytopenic purpura
- •- Hereditary angioedema
- •- Familial Mediterranean fever
- •- Fabry disease
- •- Urea cycle defects
- •- Paroxysmal nocturnal haemoglobinuria
- •- Fatty acid oxidation defects
- •- Myasthenia Gravis
- •- Hereditary haemorrhagic telangiectasia
排除标准
- •Premature termination of survey.
- •No informed consent.
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