Implementation and evaluation of personalized care for patients with amyotrophic lateral sclerosis (ALS): ALS Home monitoring & Coaching

niversity Medical Center Utrecht, Division Neurosciences, Department of Rehabilitation0 个研究点目标入组 100 人待定

概览

阶段: 不适用
干预措施: 未指定
疾病 / 适应症: 未指定
发起方: niversity Medical Center Utrecht, Division Neurosciences, Department of Rehabilitation
入组人数: 100
状态: 招募中
最后更新: 2年前

注册库

who.int

开始日期

待定

结束日期

待定

最后更新

2年前

研究类型

Observational non invasive

发起方

niversity Medical Center Utrecht, Division Neurosciences, Department of Rehabilitation

•All patients that have been diagnosed with amyotrophic lateral sclerosis (ALS), progressive muscular atrophy (PMA), or primary lateral sclerosis (PLS), that are under the care of one of the ALS care teams can be offered the option to use ‘ALS Home monitoring \& Coaching’ for their care. To be eligible for the evaluation of ‘ALS Home monitoring \& Coaching’ patients should have consented to use ‘ALS Home monitoring \& Coaching’.
•\-All healthcare providers that have been involved in the care for patients that have been using ‘ALS Home monitoring \& Coaching’ are eligible to participate.

•Patients or healthcare providers who do not speak Dutch cannot participate, because the (web)app is only available in Dutch (at this moment).

未指定