Parental experiences and perspectives of end-of-life decision-making in allogeneic paediatric stem cell transplant
Completed
- Conditions
- ouderlijke besluitvorming rondom het levenseinde post stamceltransplantatie bij kinderen.parental decision-making1002432410016214
- Registration Number
- NL-OMON40690
- Lead Sponsor
- niversitair Medisch Centrum Utrecht
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Completed
- Sex
- Not specified
- Target Recruitment
- 20
Inclusion Criteria
Parents with experience in End-Of-Life decision-making.
Parents of deceased children after paediatric allogeneic Stemceltransplant.
Parents of children who died within a year after a Stemceltransplant.
Parent whose child passed away between two years and six weeks ago.
Exclusion Criteria
The parent is unable to speak and read Dutch
The parent lives abroad.
Study & Design
- Study Type
- Observational non invasive
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method <p>Description of parents* experiences and about EOL decision-making after<br /><br>allogeneic paediatric SCT.</p><br>
- Secondary Outcome Measures
Name Time Method <p>• Identification of the way parents get insight in their child*s condition and<br /><br>treatment options during the EOL process;<br /><br>• Identification of EOL decisions from the parents* perspectives;<br /><br>• A description of parents* considerations concerning the EOL decisions they<br /><br>felt confronted with;<br /><br>• Identification of the factors which influence the parents* decision-making in<br /><br>the EOL process;<br /><br>• Identification of supportive strategies in EOL decision-making from the<br /><br>parents* perspectives.</p><br>