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Study to Evaluate Safety & Efficacy of FLX-787-ODT to Treat Fasciculations in Tongue and Appendicular Muscle in Adult Subjects With ALS

Phase 1
Terminated
Conditions
Amyotrophic Lateral Sclerosis
Fasciculation
Interventions
Registration Number
NCT03334786
Lead Sponsor
Flex Pharma, Inc.
Brief Summary

The FLX-787-107 study will determine how well FLX-787-ODT works to reduce fasciculations in patients with Amyotrophic Lateral Sclerosis (ALS). The study will measure how often fasciculations occur, if tongue and muscle strength, speech, and swallowing are affected, and monitor any side effects that might develop while taking the investigational product. Participants will be assessed before and after taking a single dose of FLX-787-ODT. Approximately 15 people will take part in this study at one center in the United States. Participants will be in the study for a single clinic visit and receive a telephone call 7 days later to monitor for side effects.

Detailed Description

Not available

Recruitment & Eligibility

Status
TERMINATED
Sex
All
Target Recruitment
3
Inclusion Criteria
  • Documented diagnosis of ALS diagnosis of less than 5 years.
  • Greater than 6 fasciculations per minute noted at least in the tongue by clinical, ultrasound, or EMG evaluation.
  • Normal oral cavity exam at screening.
Exclusion Criteria
  • Presence of clinically significant or unstable condition that would result in an increased risk of study participation or difficulty in interpretation of the study results.
  • Tremor or other movement disorder that would interfere with recording.
  • Presence of major gastrointestinal disorders, such as inflammatory bowel disease, diverticulitis, active peptic ulcer disease, or significant gastroesophageal reflux disease (i.e., not well-controlled on antacids or proton pump inhibitors), or oral or esophageal lesions/ulcers.
  • Presence of laryngospasm or significant swallowing problems.
  • Inability to tolerate a spicy sensation in the mouth or stomach.
  • Actively using illicit drugs or history of chronic substance abuse within the past year prior to screening, including abuse of alcohol.
  • Participated in a clinical study (except natural history studies without administration of an investigational product) within 30 days prior to screening.
  • Pregnant, breastfeeding, or planning to become pregnant.
  • Blood pressure of ≥160 mmHg systolic and/or ≥100 mmHg diastolic.
  • Clinically significant abnormalities in laboratory findings (including screening complete electrolyte panel, complete blood count, liver function tests).

Study & Design

Study Type
INTERVENTIONAL
Study Design
SINGLE_GROUP
Arm && Interventions
GroupInterventionDescription
FLX-787-ODT (orally disintegrating tablet)FLX-787-ODTSingle dose
Primary Outcome Measures
NameTimeMethod
Change from Baseline of Systolic Blood Pressure in mmHgPrior to and within 3 hours following administration of investigational product on the single clinic visit

Systolic blood pressure collected before and after treatment

Change from Baseline in Heart Rate in beats per minutePrior to and within 3 hours following administration of investigational product on the single clinic visit

Heart rate collected before and after treatment

Change from Baseline in Respiration Rate in breaths per minutePrior to and within 3 hours following administration of investigational product on the single clinic visit

Respiration rate collected before and after treatment

Change from Baseline of Diastolic Blood Pressure in mmHgPrior to and within 3 hours following administration of investigational product on the single clinic visit

Diastolic blood pressure collected before and after treatment

Change from Baseline in Body Temperature in degrees Celsius or FahrenheitPrior to and within 3 hours following administration of investigational product on the single clinic visit

Body temperature collected before and after treatment

Change from Baseline of Oral Cavity ExaminationPrior to and twice within 4 hours following administration of investigational product on the clinic visit

Oral Cavity Examination performed before and after treatment

Incidence of Treatment-Emergent Adverse EventsPrior to and following administration of investigational product on the clinic visit with AEs followed for 7 days after by telephone contact

Adverse Event Information collected throughout the study

Secondary Outcome Measures
NameTimeMethod
Change from Baseline of Fasciculation FrequencyPrior to and twice within 4 hours following administration of investigational product on the clinic visit

Fasciculations over time measured by EMG before and after treatment

Change from Baseline in Peak Tongue Strength in kPa by Iowa Oral Performance InstrumentPrior to and once within 4 hours following administration of investigational product on the clinic visit

Peak Tongue Strength Measurements before and after treatment

Change from Baseline in Speech AssessmentsPrior to and once within 4 hours following administration of investigational product on the clinic visit

Timed Speech Assessments before and after treatment

Change from Baseline in Swallowing AssessmentsPrior to and once within 4 hours following administration of investigational product on the clinic visit

Timed Swallowing Assessments before and after treatment

Trial Locations

Locations (1)

Beth Israel Deaconess Medical Center

🇺🇸

Boston, Massachusetts, United States

Beth Israel Deaconess Medical Center
🇺🇸Boston, Massachusetts, United States

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