atural history study of Duchenne muscular dystrophy focusing on upper limb motor functio
- Conditions
- Duchenne muscular dystrophy
- Registration Number
- JPRN-UMIN000046838
- Lead Sponsor
- ational Center of Neurology and Psychiatry
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- Male
- Target Recruitment
- 100
Not provided
1. The principal investigator or the research coordinator determined that he / she had behavioral abnormalities such as intellectual disability, autistic tendency, and attention deficit hyperactivity disorder that interfered with the implementation of motor function evaluation. 2. Severe heart failure or respiratory failure makes it difficult to visit an outpatient clinic 3. In addition, the principal investigator or the research coordinator judged that it was inappropriate as the subject of this research. 4. Participating in clinical trials / clinical trials at baseline
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method We will perform a multifaceted evaluation of upper limb function obtained from natural history.
- Secondary Outcome Measures
Name Time Method We will Evaluate ADL, QOL, and swallowing function.