DRKS00026788
Recruiting
Not Applicable
Registry for Patients with Vascular Malformations and Tumors (VasMuT)
niversitätsklinik FreiburgZentrum für Kinder- und JugendmedizinPädiatrische Hämatologie und Onkologie0 sites1,000 target enrollmentOctober 8, 2021
ConditionsQ27.8Q27.9Q28.3D18.1M89.5Q82.5Q27.3Q87.2Q85.8Q28.2I78.0Q87.3Q82.8Q87.8Q78.4D18.0C49.9C22.3Other specified congenital malformations of peripheral vascular systemCongenital malformation of peripheral vascular system, unspecifiedOther malformations of cerebral vesselsLymphangioma, any siteOsteolysisCongenital non-neoplastic naevusPeripheral arteriovenous malformationCongenital malformation syndromes predominantly involving limbsOther phakomatoses, not elsewhere classifiedArteriovenous malformation of cerebral vesselsHereditary haemorrhagic telangiectasiaCongenital malformation syndromes involving early overgrowthOther specified congenital malformations of skinOther specified congenital malformation syndromes, not elsewhere classifiedEnchondromatosisHaemangioma, any siteConnective and soft tissue, unspecifiedAngiosarcoma of liver
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Q27.8
- Sponsor
- niversitätsklinik FreiburgZentrum für Kinder- und JugendmedizinPädiatrische Hämatologie und Onkologie
- Enrollment
- 1000
- Status
- Recruiting
- Last Updated
- last year
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Clinical diagnosis
- •\- No age restriction
- •\- Patients (or their legal representatives) have given informed consent
Exclusion Criteria
- •\- Written consent to register participation is not given
Outcomes
Primary Outcomes
Not specified
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Phase 1
Treatment of congenital vascular malformations with Sirolimuscongenital vascular malformation : Vascular malformationscan involve lymphatic vessels, capillaries, veins and arteries or even combinations. These vascularmalformations are present at birth and grow with the child.MedDRA version: 20.0Level: HLTClassification code 10047091Term: Vascular malformations and acquired anomaliesSystem Organ Class: 100000005125MedDRA version: 20.0Level: LLTClassification code 10047090Term: Vascular malformation peripheralSystem Organ Class: 100000158692MedDRA version: 20.0Level: PTClassification code 10070181Term: Gastrointestinal vascular malformationSystem Organ Class: 10017947 - Gastrointestinal disordersMedDRA version: 20.0Level: PTClassification code 10074979Term: Vascular malformationSystem Organ Class: 10010331 - Congenital, familial and genetic disordersTherapeutic area: Diseases [C] - Cardiovascular Diseases [C14]EUCTR2016-002157-38-NLRadboud University Medical Center75
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Not Applicable
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