Registry for Patients with Vascular Malformations and Tumors (VasMuT)

Recruiting

• Conditions: Q27.8; Q27.9; Q28.3; D18.1; M89.5; Q82.5; Q27.3; Q87.2; Q85.8; Q28.2

• Registration Number: DRKS00026788
• Lead Sponsor: niversitätsklinik FreiburgZentrum für Kinder- und JugendmedizinPädiatrische Hämatologie und Onkologie

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2021-10-08
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 1000

Inclusion Criteria

Clinical diagnosis
- No age restriction
- Patients (or their legal representatives) have given informed consent

Exclusion Criteria

- Written consent to register participation is not given

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
- Continuous registration of all patients with diagnosed vascular malformation or tumor

Secondary Outcome Measures

Name	Time	Method
- Documentation of clinical characteristics, treatment and outcome data (disease status, treatment decisions, treatment, quality of life, survival). <br>- Assessment of biological disease characteristics (genetic findings) and correlation with clinical outcome data (prognostic and predictive markers, e.g., response to various forms of therapy)