The development of a medication-related patient-reported experience measure to better inform reimbursement decision making and clinical practice
- Conditions
- To develop and test a measure aimed to better understand patient experiences with (expensive) medications.
- Registration Number
- NL-OMON27288
- Lead Sponsor
- niversity Medical Center
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Other
- Sex
- Not specified
- Target Recruitment
- 150
Inclusion Criteria
IPF patients who 1) are prescribed Pirfenidone (current and new users), 2) can read and speak Dutch, and 3) are willing to participate.
aHUS patients who 1) are prescribed Eculizumab (current and new users), 2) can read and speak Dutch, and 3) are willing to participate.
Exclusion Criteria
N/a
Study & Design
- Study Type
- Observational non invasive
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Perceived effectiveness<br /><br>Perceived side-effects<br /><br>Ease of use<br /><br>Satisfaction
- Secondary Outcome Measures
Name Time Method