Neuroendocrine and Adrenal Tumors

Not yet recruiting

• Conditions: Neuroendocrine Tumors; Adrenal Tumor
• Interventions: Other: No intervention

• Registration Number: NCT04432532
• Lead Sponsor: University of Pennsylvania

Brief Summary

This is a prospective study of rare neuroendocrine and adrenal tumors. Subjects will be enrolled via informed consent, and blood and/or saliva and tissue will be collected. This is designed to work in conjunction with IRB#831990 which is a retrospective protocol. The University of Pennsylvania will be a contributing site with the University of Michigan as the coordinating site for the A5 alliance, a multi-institutional collaborative designed to study neuroendocrine and adrenal tumors.

Detailed Description

Not available

Study Timeline

• Study First Submitted: 2020-03-09
• Study First Submitted QC: 2020-06-12
• Study First Posted: 2020-06-16
• Status Verified: 2024-10
• Last Update Submitted: 2024-10-01
• Last Update Posted: 2024-10-03
• Study Start: 2024-12-01
• Primary Completion: 2025-02-01
• Study Completion: 2025-03-01

Recruitment & Eligibility

• Status: NOT_YET_RECRUITING
• Sex: All
• Target Recruitment: 999

Inclusion Criteria

• diagnosed with neuroendocrine and/or an adrenal tumor

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Exclusion Criteria

• pregnant women
• prisoners
• people under the age of 18

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Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Arm && Interventions

Group	Intervention	Description
Neuroendocrine Tumor	No intervention	-
Adrenal Tumor	No intervention	-

Primary Outcome Measures

Name	Time	Method
Survival	10 years

Secondary Outcome Measures

Name	Time	Method
Tumor Recurrence	10 years	We want to record recurrences in our patient population