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Add-on Therapy With Low Dose Fenfluramine in Lennox Gastaut Epilepsy

Phase 2
Active, not recruiting
Conditions
Lennox Gastaut Syndrome
Epilepsy
Interventions
Registration Number
NCT02655198
Lead Sponsor
KU Leuven
Brief Summary

In this trial, the potential anti-epileptic effect of low dose fenfluramine in Lennox Gastaut epilepsy will be studied. An exploratory dose finding add-on trial is proposed. At baseline and at the end of the study, ECG and ultrasound of the heart will be performed as part of the safety follow up.

Detailed Description

Not available

Recruitment & Eligibility

Status
ACTIVE_NOT_RECRUITING
Sex
All
Target Recruitment
13
Inclusion Criteria

Not provided

Exclusion Criteria

Not provided

Study & Design

Study Type
INTERVENTIONAL
Study Design
SINGLE_GROUP
Arm && Interventions
GroupInterventionDescription
fenfluramineFenfluramineExperimental : one armed open label study : Add-on fenfluramine in refractory Lennox Gastaut patients. Starting dose 0.2mg/kg/day. In non-responders (\<50% seizure frequency decrease), dose will be uptitrated every 4 weeks from 0,2 to 0,4 and max 0,8 mg/kg/day (max 30 mg). Total duration study and max exposure to the drug 20 weeks
Primary Outcome Measures
NameTimeMethod
Efficacy of add-on FFA in Lennox Gastaut epilepsy: Number of responders and seizure free patients at each FFA dosage (0,2 or 0,4 or 0,8 mg/kg/day)up to 20 weeks
Secondary Outcome Measures
NameTimeMethod
Seizure frequency change per patient and per major seizure type (Tonic Clonic Seizures (TCS), Tonic Seizures (TS), Atonic Seizures (AS), Focal Seizures (FS))20 weeks
Adverse events (cardiac and general)20 weeks
Sleep quality : 10 point scale instrument to score sleep quality20 weeks
CGI (clinical global impression) scale at last visit , by patient/caregiver and treating physician20 weeks

Trial Locations

Locations (1)

University Hospitals UZ Leuven

🇧🇪

Leuven, Belgium

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