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临床试验/NCT04771260
NCT04771260已完成不适用

A Realist-informed Investigation of the Organisation and Delivery of Health and Social Care Services for People With Fibromyalgia Living in the UK

University of Aberdeen1 个研究点 分布在 1 个国家目标入组 65 人开始时间: 2021年1月21日最近更新:
适应症

试验速览

阶段
不适用
状态
已完成
入组人数
65
试验地点
1
主要终点
Model of care

研究概览

简要总结

This research study aims to:

i) Explore and understand how health and social care for people with fibromyalgia living in the UK is organised and delivered.

ii) Identify models of practice to inform co-design of new care pathways for people with fibromyalgia living in the UK.

To do this, up to ten UK-based case studies will be conducted in total: at least one each in England, Scotland and Wales. Interviews will be conducted with approximately 10 participants per case study, for a total of 100 participant interviews. Qualitative observations (in-person or on-line) will be conducted with a similar number of people (total 100 participants). Online focus groups will also be carried out with approximately 6 to 8 participants per group (up to ten groups for a total 60-80 participants). Participants will include healthcare professionals (for example, doctors, nurses, allied health professionals), social care practitioners (for example, social prescribers), service delivery managers, commissioners and other individuals involved in the organisation and delivery of health and social care services for people with fibromyalgia living in the UK.

研究设计

研究类型
Observational
观察模型
Ecologic Or Community
时间视角
Cross Sectional

入排标准

性别
All
接受健康志愿者

入选标准

  • NHS and/or non-NHS organisations in the UK providing health and social care to people with fibromyalgia.
  • Health and social care professionals identifying and or providing support for people with fibromyalgia in one of the ten case studies.
  • NHS/non-NHS staff influential in the organisation and/or delivery of health and social care to people with fibromyalgia in one of the ten case studies, for example, service managers, professional service leads, commissioners.

排除标准

  • NHS/non-NHS organisations in the UK not providing health or social care to people with fibromyalgia.
  • NHS/non-NHS staff who are not able to communicate sufficiently well in English to participate effectively.

结局指标

主要结局

Model of care

时间窗: By February 2022

For each case study, how health and social care is being delivered will be the main outcome.

次要结局

未报告次要终点

研究者

申办方类型
Other
责任方
Sponsor

研究点 (1)

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