SCI&U Peer Health Coaching Program for Individuals Newly Discharged from Inpatient Rehabilitation
- Conditions
- Spinal Cord Injury
- Registration Number
- NCT06677905
- Lead Sponsor
- University of Toronto
- Brief Summary
The goal of this clinical trial is to learn if the online program and web-based platform for delivery of self-management services to people with spinal cord injury (SCI) called "SCI \& U" can support transitions from hospital to the community after injury. Specifically, can providing support from trained peer health coaches via the SCI \& U web-based self-management program increase health self-management among those within two years of a spinal cord injury with a planned discharge to or living in the community with SCI for less than two years in the province of British Columbia, Canada or the state of Connecticut, United States.
The main question it aims to answer is:
• Does the SCI \& U web-based self-management program lower emotional distress and increase self-efficacy Researchers will compare those who participate in SCI \& U with those who receive usual peer support after 6 months to see if the SCI \& U program improves self-management knowledge, skills and self-efficacy and decreases secondary complications
Participants will:
* engage in up to 14 online sessions, each of which lasts about an hour with a peer health coach trained in motivational interviewing, goal setting and brief action planning. During sessions, they may also review resources and create follow up plans on the online platform on health management topics
* complete an interviewer administered survey at baseline, 6 and 12 months
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- NOT_YET_RECRUITING
- Sex
- All
- Target Recruitment
- 76
- 18 years and older, with a planned discharge to or living in community with SCI for no more than two years since injury and with the ability to speak and understand English
- not a resident of British Columbia or Connecticut
Study & Design
- Study Type
- INTERVENTIONAL
- Study Design
- PARALLEL
- Primary Outcome Measures
Name Time Method Emotional Distress Subscale in Health Education Impact Questionnaire From baseline assessment to 6 months followup The Emotional Distress construct measures overall negative affect including worry, depression and anger.
- Secondary Outcome Measures
Name Time Method Skill and Technique Acquisition in Health Education Impact Questionnaire From baseline assessment to 6 months followup Social Integration and Support in Health Education Impact Questionnaire From baseline assessment to 6 months followup Health Services Navigation in Health Education Impact Questionnaire From baseline assessment to 6 months followup Health Directed Activities in Health Education Impact Questionnaire From baseline assessment to 6 months followup Positive and Active Engagement in Life in Health Education Impact Questionnaire From baseline assessment to 6 months followup Self-monitoring and Insight in Health Education Impact Questionnaire From baseline assessment to 6 months followup Constructive Attitudes and Approaches in Health Education Impact Questionnaire From baseline assessment to 6 months followup The Patient Activation Measure - (PAM) Survey From baseline assessment to 6 months followup The Patient Activation Measure (PAM) is a commercial product which assesses an individual's knowledge, skill, and confidence for managing one's health and healthcare. The PAM survey measures patients on a 0-100 scale and can segment patients into one of four activation levels. Individuals who measure high on this assessment typically understand the importance of taking a pro-active role in managing their health and have the skills and confidence to do so.
Moorong Self-Efficacy Scale From baseline assessment to 6 months followup Measures self-efficacy in performing functional activities of daily living in individuals with SCI.
Consists of two factors: daily activities (e.g., I can maintain my personal hygiene with or without help), and social functioning (e.g., I can enjoy spending time with my friends)Secondary Conditions Scale From baseline assessment to 6 months followup A 16-item self-report measure that targets secondary conditions associated with SCI that impact health on a 4-point scale from "not experienced in the last 3 months" to significant or chronic problem"
NIH Toolbox Loneliness Scale From baseline assessment to 6 months followup System Usability Scale From baseline assessment to 6 months followup This scale was designed to evaluate the usability of interactive systems flexibly and expediently.