Follow-up Survey of Patients Who Were Treated for Medulloblastoma or Primitive Neuroectodermal Tumors of the Central Nervous in Norway

Completed

• Conditions: Brain Tumor

• Registration Number: NCT02851355
• Lead Sponsor: Oslo University Hospital

Brief Summary

Clinical follow-up survey of the Norwegian material of paediatric patients who received therapy for medulloblastoma and CNS-PNET from 1974 - 2013 with a focus on quality of life, education, work, family and children, delayed effects of tumour disease and treatment, endocrine evaluation, existence of auditory neuropathy, and neuropsychological testing.

Detailed Description

Not available

Study Timeline

• Study First Submitted: 2016-06-22
• Study First Submitted QC: 2016-07-27
• Study First Posted: 2016-08-01
• Study Start: 2016-09
• Primary Completion: 2017-09
• Study Completion: 2018-08
• Status Verified: 2019-03
• Last Update Submitted: 2019-03-13
• Last Update Posted: 2019-03-15

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 2

Inclusion Criteria

• Whose who has been treated for medulloblastoma og CNS-PNET between 1974 and 2013

Exclusion Criteria

• Other brain tumours

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
SF 36 for those older than 18 years	1 year	Questionnaire
PedsQL for those younger than 18 years	1 year	Questionnaire

Trial Locations

Locations (1)

Einar Stensvold; 🇳🇴 Oslo, Norway