Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care

Completed

• Conditions: Autistic Disorder

• Registration Number: NCT04820998
• Lead Sponsor: Centre Hospitalier Universitaire de Saint Etienne

Brief Summary

Study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in the various social spaces and improve collaboration between professionals and parents

Detailed Description

Identify the living conditions related to the housing of children with autism spectrum disorders (ASD) treated at the Léo Kanner Center (CLK), psychopathology department of the Saint-Étienne University Hospital. The aim is to describe through the trajectories of children with ASD and their families, their living conditions, and through interviews with professionals who support them, how the specificities related to precarious situations are identified and taken into account.

A qualitative survey, carried out by sociological interviews with families whose children are followed at the Léo Kanner Center (CLK) and the professionals who care for them, would make it possible to collect data on the development of a young child with autism in his home and more generally in his habitat.

The purpose of this study is to study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in different social spaces and improve collaboration between professionals and parents. The project aims to bring children with autism spectrum disorders (ASD) into a dynamic of access to human rights. He suggests three levers to achieve this: rely on a precise inventory of needs; work towards a transformation of representations; streamline access to healthcare and common law services.

Study Timeline

• Study First Submitted: 2021-03-25
• Study First Submitted QC: 2021-03-26
• Study First Posted: 2021-03-29
• Study Start: 2021-09-01
• Primary Completion: 2022-04-01
• Study Completion: 2023-01-01
• Status Verified: 2023-07
• Last Update Submitted: 2023-07-07
• Last Update Posted: 2023-07-10

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 45

Inclusion Criteria

• Families having their child followed in the child psychiatry service of the Léo Kanner Center (CLK),
• Children followed for Autism Spectrum Disorders (ASD),
• Families who received informed information about the study and who co-signed a consent to participate in the study with the investigator.

Exclusion Criteria

• Opinion of the child's referring physician contraindicating inclusion
• Refusal of one of the legal guardians to participate in the study

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
living conditions of children with Autism Spectrum Disorders (ASD)	hours 2	To identify the living conditions related to the housing of children with Autism Spectrum Disorders (ASD) who are cared for at the Léo Kanner Center (CLK), psychopathology department of the University Hospital of Saint-Etienne.

Secondary Outcome Measures

Name	Time	Method
Precarity	hours 2	Families's interviews about their precarious situation of living and the consequences on their autistic child care

Trial Locations

Locations (1)

Chu St Etienne; 🇫🇷 Saint-Étienne, France