Underutilization of Hospice Care in Older Black Adults

Not Applicable

Active, not recruiting

• Conditions: Hospice Care; Attitude; Decision Aid; Decision-Making; Aging; Knowledge
• Interventions: Other: IDECIDE-HOSPICE

• Registration Number: NCT06408090
• Lead Sponsor: University of Colorado, Denver

Brief Summary

This study will sample older Black adults to test their knowledge and opinions of hospice.

Detailed Description

Short stays in hospice strain the Medicare system. Black adults over age 65 are one of the fastest growing groups in the US. Despite greater disease burden than their White peers, older Black adults are less likely to enroll in hospice. Misconceptions about hospice and mistrust may contribute to this disparity. The research will seek to understand older Black adults' decision-making processes around hospice. The PtDA is a tool to assist in this decision-making process. The influence of this tool will be measured as well. The sample of older Black adults will represent the national population. The research will explore various subgroups, which previous research has been unable to address. This study will use four validated survey batteries. About 200 of the 400 participants will also review the decision aid. These adults will complete a second survey. About 20 of these adults will also complete an interview about the decision aid. Through the surveys and interviews, this research will explore barriers to hospice usage for older Black adults.

Study Timeline

• Study Start: 2023-06-02
• Study First Submitted: 2023-10-31
• Status Verified: 2024-05
• Study First Submitted QC: 2024-05-07
• Last Update Submitted: 2024-05-07
• Study First Posted: 2024-05-09
• Last Update Posted: 2024-05-09
• Primary Completion: 2024-09-30
• Study Completion: 2026-06-01

Recruitment & Eligibility

• Status: ACTIVE_NOT_RECRUITING
• Sex: All
• Target Recruitment: 400

Inclusion Criteria

• Identifies as Black or African American
• Can read and write English

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Exclusion Criteria

• Unable to read/write English
• Have a cognitive impairment that prevents them from providing informed consent

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Study & Design

• Study Type: INTERVENTIONAL
• Study Design: SINGLE_GROUP

Arm && Interventions

Group	Intervention	Description
Intervention	IDECIDE-HOSPICE	200 participants reviewed the PtDA decision tool for education on hospice care and subsequently completed a second survey which was identical to the first.
Interview	IDECIDE-HOSPICE	20 of the 200 Intervention participants will complete an interview using qualitative methods surrounding the topic of hospice care and the PtDA.

Primary Outcome Measures

Name	Time	Method
Hospice Knowledge	June 2023 through September 2023	assessed using 23-item hospice knowledge survey
Hospice Beliefs and Attitudes	June 2023 through September 2023	measured using 8-item Hospice Beliefs and Attitudes Scale (HBAS)
Self-Efficacy	June 2023 through September 2023	assessed using 11-item Decision Self-Efficacy Scale (DSE)

Secondary Outcome Measures

Name	Time	Method
Medical Mistrust	June 2023 through September 2023	measured using 17-item Medical Mistrust Index (MMI)

Trial Locations

Locations (1)

University of Colorado Denver | Anschutz Medical Campus; 🇺🇸 Aurora, Colorado, United States