Knowledge of and Attitudes Toward Hospice, Decision-making Around Hospice in Older Black Adults
试验速览
- 阶段
- 不适用
- 状态
- 进行中（未招募）
- 入组人数
- 400
- 试验地点
- 1
- 主要终点
- Hospice Knowledge
研究概览
简要总结
This study will sample older Black adults to test their knowledge and opinions of hospice.
详细描述
Short stays in hospice strain the Medicare system. Black adults over age 65 are one of the fastest growing groups in the US. Despite greater disease burden than their White peers, older Black adults are less likely to enroll in hospice. Misconceptions about hospice and mistrust may contribute to this disparity. The research will seek to understand older Black adults' decision-making processes around hospice. The PtDA is a tool to assist in this decision-making process. The influence of this tool will be measured as well. The sample of older Black adults will represent the national population. The research will explore various subgroups, which previous research has been unable to address. This study will use four validated survey batteries. About 200 of the 400 participants will also review the decision aid. These adults will complete a second survey. About 20 of these adults will also complete an interview about the decision aid. Through the surveys and interviews, this research will explore barriers to hospice usage for older Black adults.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Single Group
- 主要目的
- Health Services Research
- 盲法
- Double (Participant, Investigator)
入排标准
- 年龄范围
- 65 Years 至 99 Years（Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Identifies as Black or African American
- •Can read and write English
排除标准
- •Unable to read/write English
- •Have a cognitive impairment that prevents them from providing informed consent
研究组 & 干预措施
Intervention
200 participants reviewed the PtDA decision tool for education on hospice care and subsequently completed a second survey which was identical to the first.
干预措施: IDECIDE-HOSPICE (Other)
Interview
20 of the 200 Intervention participants will complete an interview using qualitative methods surrounding the topic of hospice care and the PtDA.
干预措施: IDECIDE-HOSPICE (Other)
Control
200 of the 400 participants completed two identical surveys one month apart but did NOT review the PtDA decision tool prior to completing the second survey timepoint. Instead, these participants reviewed an 8-page attention control activity booklet. These participants are used as a control group in assessing any change in knowledge or opinions of hospice after the intervention group reviewed the PtDA.
结局指标
主要结局
Hospice Knowledge
时间窗: June 2023 through September 2023
assessed using 23-item hospice knowledge survey
Hospice Beliefs and Attitudes
时间窗: June 2023 through September 2023
measured using 8-item Hospice Beliefs and Attitudes Scale (HBAS)
Self-Efficacy
时间窗: June 2023 through September 2023
assessed using 11-item Decision Self-Efficacy Scale (DSE)
次要结局
- Medical Mistrust(June 2023 through September 2023)