A Digital Life Story to Support Person-centred Care for Older Adults With Dementia Perspectives

Recruiting

• Conditions: Cognitive Impairment; Dementia
• Interventions: Device: Test of the application Min Memoria

• Registration Number: NCT06337201
• Lead Sponsor: Blekinge Institute of Technology

Brief Summary

Person-centred care can be supported when healthcare professionals access and actively use the information recorded in a life story. Active use of the life story can create security for a person with dementia and their carers. The written life story describes the person and their life experiences, which can define the person's identity. National guidelines for care and nursing in dementia and Blekinge's regional guidelines emphasise the importance of care and nursing for people with dementia, which should be given with a person-centred approach, where the life story becomes a tool for healthcare professionals. Research shows that a life story can be designed in several ways. For example, in book form, as a brochure, collage, memory box or electronically. The life story is also intended as a tool for healthcare professionals to create security and facilitate communication with the individual. As more and more older adults are using computers and tablets as assistive devices, and it is also becoming more common for healthcare professionals to use, for example, tablets as assistive devices in nursing care, the life story could be shared in digital form as an application and become a living document.

Overall aim: To test an application for the life story with the intention of supporting person-centred care for older adults with dementia and to test whether the application can replace the written completion document. Study I: Exploring the research area of the life story in digital form. Study II: Focus group interviews with healthcare professionals. Study III: Test the application, Min Memoria. Study IV: Observations on the use of the application.

Detailed Description

Not available

Study Timeline

• Study Start: 2022-08-15
• Study First Submitted: 2024-01-29
• Status Verified: 2024-03
• Study First Submitted QC: 2024-03-22
• Last Update Submitted: 2024-03-22
• Study First Posted: 2024-03-29
• Last Update Posted: 2024-03-29
• Primary Completion: 2026-01
• Study Completion: 2027-06

Recruitment & Eligibility

• Status: RECRUITING
• Sex: All
• Target Recruitment: 30

Inclusion Criteria

• Healthcare professionals using a life story in daily care.

Exclusion Criteria

• N/A

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Arm && Interventions

Group	Intervention	Description
Healthcare professionals working in daycare center and residential care.	Test of the application Min Memoria	-

Primary Outcome Measures

Name	Time	Method
Data on the use of a digital life story tool.	September 2024 - August 2025	Explore the usability, accessibility and positive and negative effects on daily care. Data will be collected through a survey with healthcare professionals (participants).
Observation when using a digital life story	September 2025 - December 2026	Data will be collected through non-participant observations. Observing communication and interactions between the healthcare professionals and the older adults when using the digital tool.
Healthcare professionals' experiences using a written life story in the daily care of older adults with dementia	From October 2023 - August 2024	Focus group interviews

Trial Locations

Locations (1)

Blekinge Institute of Technology; 🇸🇪 Karlskrona, Blekinge, Sweden