The effect of virtual child disease management program on parents of children with coagulation factor deficiencies

Not Applicable

• Conditions: Condition 1: Hemophilia A. Condition 2: Hemophilia B. Condition 3: Von Willebrand's disease.; Hereditary factor VIII deficiency; Hereditary factor IX deficiency; Von Willebrand's disease; D68.0

• Registration Number: IRCT20130616013690N9
• Lead Sponsor: Shiraz University of Medical Sciences

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Last Update Posted: 26 April 2021

Recruitment & Eligibility

• Status: Pending
• Sex: All
• Target Recruitment: 60

Inclusion Criteria

Parents with a child in the age range of 1-11 years
Parents of a child with coagulation factor deficiencies
Parents' oriented to time, person and place
Parents' living with this child in the same house
Parents' access to the Internet and social networks

Exclusion Criteria

Parental participation in a similar disease management program over the past 3 months
Parents suffering from known mental diseases such as depression, anxiety, and psychosis
The child suffering from congenital, chromosomal, neuro-muscular and systemic diseases

Study & Design

• Study Type: interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Caregiver burden. Timepoint: Before and 8 weeks after the intervention. Method of measurement: The HEMOphilia associated CAregiver Burden scale (HEMOCAB).;Parental Social adjustment. Timepoint: Before and 8 weeks after the intervention. Method of measurement: Bell’s Social Adjustment Inventory.