NCT04794907Not yet recruitingNot Applicable
Retinal Care Data Repository
Conditions
Trial Snapshot
- Phase
- Not Applicable
- Status
- Not yet recruiting
- Sponsor
- Retinal Care Inc.
- Enrollment
- 1,000
- Primary Endpoint
- Risk Stratification
Study Overview
Brief Summary
The Retinal Care Data Repository's primary objective is to make data available for Retinal Care to develop algorithms that improve the care of people with retinal diseases.
Detailed Description
The initial focus is to develop algorithms that prevent, delay the progression, or improve treatment of diabetic retinopathy (DR) and age-related macular degeneration (AMD). Examples include but are not limited to: describing the incidence, prevalence, and severity distribution of DR and AMD in the overall population and subgroups; diagnosing specified severity thresholds for DR and AMD; predicting the development and progression of DR and AMD for the overall population, subgroups, and individuals; and recommending tests and treatments to prevent or delay the progression of DR and AMD for the overall population, subgroups, and individuals.
Data will be collected retrospectively and prospectively.
Study Design
- Study Type
- Observational
- Observational Model
- Cohort
- Time Perspective
- Other
Eligibility Criteria
- Ages
- 0 Years to 100 Years (Child, Adult, Older Adult)
- Sex
- All
- Accepts Healthy Volunteers
- No
Inclusion Criteria
- •Diabetes or age 65 years and older
Exclusion Criteria
- Not provided
Outcomes
Primary Outcomes
Risk Stratification
Time Frame: Decade
Predict the participant's risk of developing specific severity levels of DR and AMD
Secondary Outcomes
No secondary outcomes reported
Investigators
Similar Trials
Active, not recruiting
Not Applicable
Virta Health RegistryMultiple Chronic ConditionsChronic DiseaseDisease ProgressionLong-Term CareTelemedicineNCT03474692Virta Health50,000
Recruiting
Not Applicable
National Eye Institute Biorepository for Retinal DiseasesVon Hippel-Lindau SyndromeRetinal DiseaseDiabetic RetinopathyRetinal Vein OcclusionAge-Related Macular DegenerationNCT01496625National Eye Institute (NEI)650
Recruiting
Not Applicable
Data Collection of Patients With Rare Bone DiseasesSkeletal DysplasiaNCT05247645Luca Sangiorgi1,000
Completed
Not Applicable
Eligard Observational Registry for Patients With Prostate CancerCancer of the ProstateNCT00992251CMX Research354
Recruiting
Not Applicable
National Registry of Rare Kidney DiseasesAutosomal Recessive Polycystic Kidney DiseaseAdenine Phosphoribosyltransferase DeficiencyAH AmyloidosisAHL AmyloidosisAL AmyloidosisAutoimmune Distal Renal Tubular AcidosisAutosomal Recessive Proximal Renal Tubular AcidosisAutosomal Recessive Distal Renal Tubular AcidosisBartter SyndromeBK NephropathyC3 Glomerulopathy With Monoclonal GammopathyC3 GlomerulopathyCalciphylaxisCrystalglobulinaemiaCrystal-storing HistiocytosisDent DiseaseDenys-Drash SyndromeDominant Hypophosphataemia With Nephrolithiasis and/or OsteoporosisDrug Induced Fanconi SyndromeDrug-Induced HypomagnesemiaDrug-Induced Nephrogenic Diabetes InsipidusEpilepsy, Ataxia, Sensorineural Deafness and TubulopathyFamilial Hypomagnesemia With Hypercalciuria and NephrocalcinosisFamilial Primary Hypomagnesemia With HypocalcuriaFamilial Primary Hypomagnesaemia With NormocalciuriaFamilial Renal GlucosuriaFanconi Renotubular Syndrome 1Fanconi Renotubular Syndrome 2Fanconi Renotubular Syndrome 3Fibrillary GlomerulonephritisFibromuscular DysplasiaGeneralised Pseudohypoaldosteronism Type 1Gitelman SyndromeHeavy-Metal-Induced Fanconi SyndromeHepatocyte Nuclear Factor 1-Beta-Associated Monogenic DiabetesHereditary Renal HypouricemiaHereditary Hypophosphatemic Rickets With HypercalciuriaHyperuricaemic NephropathyIgA NephropathyImmunotactoid Glomerulonephritis With Organised Microtubular Mononoclonal Immunoglobulin DepositsInherited Renal Cancer SyndromesIntracapillary Monoclonal IgM Without CryoglobulinIntraglomerular/Capillary Lymphoma/LeukaemiaIsolated Autosomal Dominant Hypomagnesaemia Glaudemans TypeLight Chain Cast NephropathyLight Chain Proximal Tubulopathy Without CrystalsLight Chain Proximal Tubulopathy With CrystalsLowe SyndromeMinimal Change NephropathyMitochondrial Disease Of The KidneyMonoclonal Immunoglobulin Deposition DiseaseNail Patella SyndromeNephrogenic Syndrome of Inappropriate AntidiuresisNephronophthisisPrimary Hypomagnesemia With Secondary HypocalcemiaPrimary HyperoxaluriaProliferative Glomerulonephritis With Monoclonal IgG DepositsProximal Tubulopathy Without CrystalsPseudohypoaldosteronism Type 1, 2A-2ESickle Cell NephropathyShiga Toxin Associated Haemolytic Uraemic SyndromeSteroid Resistant Nephrotic SyndromeSteroid-Sensitive Nephrotic SyndromeThin Basement Membrane NephropathyThrombotic Microangiopathy With Monoclonal GammopathyType 1 Cryoglobulinaemic GlomerulonephritisTuberous SclerosisUnclassified Monoclonal Gammopathy Of Renal SignificanceVasculitisMembranous NephropathyFocal Segmental GlomerulosclerosisRetroperitoneal FibrosisPure Red Cell AplasiaAutosomal Dominant Polycystic Kidney DiseaseDense Deposit DiseaseCystinuriaFabry DiseaseCystinosisAtypical Hemolytic Uremic SyndromeNephrogenic Diabetes InsipidusMedullary Cystic Kidney DiseaseMembranoproliferative GlomerulonephritisLiddle SyndromeAlport SyndromeNCT06065852UK Kidney Association35,000