Identification of Needs and Neuropsychological and Biopsychosocial Evolution in the Pre/Post-transplant and 6-month Follow-up Phases in Pediatric Population (the TransplantKIDS Mental Health Project)

Test of Nonverbal Intelligence, Fourth Edition (TONI-4) form B

时间窗: 6 months

It assesses intellectual functioning free of cultural influences by the total number of items achieved.

Spanish version of the California Verbal Learning Test (TAVEC)

时间窗: 6 months

Assessment of verbal memory for adolescents 16 to 18 years old by the maximum number of remembered elements.

Test of Nonverbal Intelligence, Fourth Edition (TONI-4) form A

时间窗: Baseline

It assesses intellectual functioning free of cultural influences by the total number of items achieved.

Digit span subtests from the Wechsler Intelligence Scale for Children, Fifth Edition (WISC-V) or the Wechsler Adult Intelligence Scale, Fourth Edition (WAIS-IV): Forward, Backward and Sequencing subtests

时间窗: 6 months

It evaluates span of immediate recall and verbal working memory by the total number of items achieved and the maximum number of remembered elements.

The Rey-Osterrieth Complex Figure (ROCF) test

时间窗: 6 months

It measures viso-constructive organisational ability and immediate and delayed visual recall. One point is awarded for each component that is properly reproduced.

Pediatric Sleep Disturbances Short Form (PROMIS)

时间窗: 6 months

A 4-item questionnaire that assesses problems with sleep reconciliation and sleep maintenance in the last 7 days. Higher scores on a Likert scale from 1-5 indicate worse sleep.

Initial survey created ad hoc

时间窗: Baseline

Both sociodemographic variables (sex, age, patient's level of studies, parents' level of studies) and clinical variables (current pharmacological treatment - active ingredient and dose) will be collected.

Behavior Rating Inventory of Executive Function - 2 (BRIEF-2)

时间窗: 6 months

A 63-item questionnaire that assesses patient's executive functions (completed by parents). Higher scores in each domain indicate a worse outcome. Spanish norms in T scores (Mean = 50; standard deviation = 10).

Spanish version of the California Verbal Learning Test for children (TAVECI)

时间窗: 6 months

Assessment of verbal memory in children 3 to 16 years old by the maximum number of remembered elements.

Vocabulary subtest from the Wechsler Intelligence Scale for Children, Fifth Edition (WISC-V) or the Wechsler Adult Intelligence Scale, Fourth Edition (WAIS-IV)

时间窗: 6 months

It measures semantic memory by the total number of items achieved.

Symbol Digit Modalities Test (SDMT)

时间窗: 6 months

It assesses processing speed by the total number of items achieved.

Conners Continuous Auditory Test of Attention (CATA)

时间窗: 6 months

It measures auditory sustained attention. Omissions and commissions are measured for 5 different dimensions: inattentiveness, impulsivity, sustained attention, auditory laterality and auditory mobility.

Fluency Verbal Test (TFV)

时间窗: 6 months

It assesses linguistic-executive functions such as phonological fluency and semantic fluency. One point is awarded for each word that is correctly produced.

Behavioral Assessment System for Children - 3 (BASC-3)

时间窗: 6 months

It measures patients' emotional and behavioural problems, both in its version by the patient's legal guardians and self-reported by the patient. It is an 139-item report, rated on a 4-point frequency Likert scale. High scores indicate problematic levels of functioning. Spanish norms in T scores (Mean = 50; standard deviation = 10).

Brief Pain Inventory (BPI)

时间窗: 6 months

This 10-item questionnaire includes questions (from 0 to 10 referring to the last 7 days) covering two dimensions: pain intensity (worst and mildest pain in the week, average pain, and current pain), and pain interference (with general activity, mood, walking, school, sleep, as well as enjoyment of life). Higher scores on a Likert scale from 0-10 indicate more pain.

Adolescent Insomnia Questionnaire (AIQ)

时间窗: 6 months

It is a 13-item questionnaire whose original version is in English. In the present study, this questionnaire will be adapted and validated into Spanish. Higher scores on a Likert scale from 0-4 indicate more insomnia.

Simplified Medication Adherence Questionnaire (SMAQ)

时间窗: 6 months

A 6-item self-report that measures adherence to medication. For items 1-4 yes or no answers are required. Item 5 requires a multiple choice answer in terms of frequency (5 different options are provided). Item 6 requires a number input. The final score is a dichotomous variable: non-adherent versus adherent patient.