Measure of Engagement of Epilepsy Patients in Messaging Groups and Group Characteristics That Influence Engagement.
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 202
- 试验地点
- 10
- 主要终点
- Engagement
研究概览
简要总结
This study will measure the engagement of people with epilepsy in a mobile phone based messaging platform as well as understand if there is an impact on their self-management
详细描述
The primary purpose of this study is to assess a person with epilepsy's level of usage of a mobile messaging application for peer support. The secondary purpose is to understand what characteristics of their group drive different levels of usage and improvements in self-management.
Participants can participate as much or little as they want for a minimum of six weeks. Participants will complete an initial and a final questionnaire.
研究设计
- 研究类型
- Interventional
- 分配方式
- Na
- 干预模型
- Single Group
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 年龄范围
- 18 Years 至 65 Years（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Age, diagnosis of epilepsy, have access to a smartphone capable of running messaging application
排除标准
- •A diagnosis of learning disability/difficulty, significant mental health conditions; those in care, bereaved, or prisoners. Any other vulnerable individuals (individuals unable to protect themselves against significant harm or exploitation)
研究组 & 干预措施
Experimental
The Experimental Group will be placed in a group using the matching algorithm. Facilitator support and education intervention
干预措施: Facilitator support and education (Behavioral)
结局指标
主要结局
Engagement
时间窗: 6 weeks
Average participant number of posts over time frame assessed by tracking number of participant entries
次要结局
- Epilepsy medication adherence(Change in Baseline to 6 weeks)
- Epilepsy self-management(Change in Baseline to 6 weeks)
- Epilepsy quality of life(Change in Baseline to 6 weeks)
研究者
Abbas Hasan
Honorary Researcher
Royal Free Hospital NHS Foundation Trust