EMBED-Care (Empowering Better End-of-Life Dementia Care) Framework study
- Conditions
- DementiaMental and Behavioural Disorders
- Registration Number
- ISRCTN55008569
- Lead Sponsor
- niversity College London
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Ongoing
- Sex
- All
- Target Recruitment
- 140
Person with dementia:
1. 18 years and older
2. All genders
3. Diagnosis or symptoms suggestive of dementia/cognitive impairment as a result of dementia in medical or care home records (any type/any severity)
4. Permanently resident in participating care home OR
5. New referral to Primary Care Network (PCN) team
Carer of person with dementia:
1. 18 years and older
2. All genders
3. Capacity to consent
4. Able to read and write in English
5. Identifies as family/friend carer of PWD
6. Minimum of fortnightly contact with PWD (by phone, in person)
Health and social care professionals:
1. All permanent care home staff involved in providing direct resident care
2. Care home managers
3. Bank and temporary staff care home staff
1. Those health/social care professionals with participating people with dementia on their active caseloads, and involved in delivery or using the EMBED-Care Framework
2. Primary/community health/social care professionals working with participating care homes and involved in the delivery or using the EMBED-Care Framework in conjunction with the care home staff
Person with dementia:
1. Under 18 years of age
2. No cognitive impairment that is likely related to dementia
3. Those in care homes who are not permanently resident e.g. in respite care
Carer of person with dementia:
1. Under 18 years of age
2. Less than two-weekly phone or in-person contact with person with dementia
3. Lacks the capacity to consent
4. Unable to read/write in English
Health and social care professionals:
1. Those care home staff not in a managerial position or not involved in direct resident care
2. Those with no active involvement in the care of participating people with dementia
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method