Art Therapy in Progressive Supranuclear Palsy: Studying the Effect on Quality of Care
概览
- 阶段
- 不适用
- 干预措施
- 未指定
- 疾病 / 适应症
- Progressive Supranuclear Palsy
- 发起方
- Vanderbilt University Medical Center
- 入组人数
- 10
- 试验地点
- 1
- 主要终点
- PSP-QoL (Progressive Supranuclear Palsy Qualify of Life Scale)
- 状态
- 进行中（未招募）
- 最后更新
- 3个月前
概览
简要总结
Our aim is to study the effect of art therapy for people with PSP, with a focus on alleviating the symptoms associated with PSP, enhancing the overall quality of life for patients, and reducing caregiver stress. Overall, through our collaborative efforts on this study, we hope to unlock the benefits of art therapy for this vulnerable patient population, ultimately improving their overall well-being and enhancing their quality of life.
详细描述
Progressive Supranuclear Palsy (PSP) is typically manifested by a multitude of distressing symptoms, including bradyphrenia and bradykinesia, speech dyspraxia, visual problems, and postural instability with high risk of falls. These symptoms not only inflict physical hardships on patients but also have profound emotional and psychological implications. Thus, a decline in self-esteem, a reduction in the quality of life, and heightened stress for caregivers is remarkable. In recent years, art therapy has garnered attention as a potentially effective intervention for individuals grappling with neurodegenerative disorders. Art therapy encompasses a wide array of activities that promote cognitive and motor skills, including shape recognition, motion perception, sensory-motor integration, abstraction, and eye-hand coordination. As a result, it holds promise as a therapeutic tool for addressing the intricate challenges faced by PSP people. Although art therapy has demonstrated positive outcomes in enhancing visual cognitive skills, refining visual exploration strategies, and bolstering general motor function in Parkinson's disease, its potential in the context of PSP remains largely unexplored. Given the unique symptomatology and emotional toll of PSP, patients suffering from this condition stand to benefit significantly from the healing and therapeutic effects of art therapy. In light of these considerations, our proposal aims to bridge this knowledge gap by implementing and rigorously studying the impact of art therapy on PSP patients. Our aim is to investigate the effect of art therapy for people with PSP, with a focus on alleviating the symptoms associated with PSP, enhancing the overall quality of life for patients, and reducing caregiver stress. Overall, through our collaborative efforts on this study, we hope to unlock the benefits of art therapy for this vulnerable patient population, ultimately improving their overall well-being and enhancing their quality of life.
研究者
Amy E Brown
Assistant Professor
Vanderbilt University Medical Center
入排标准
入选标准
- •Diagnosis of progressive supranuclear palsy
- •Have the cognitive ability to provide informed consent
排除标准
- •Primary neurological diagnosis other than progressive supranuclear palsy
- •Cognition too impaired to provide informed consent
结局指标
主要结局
PSP-QoL (Progressive Supranuclear Palsy Qualify of Life Scale)
时间窗: 8-10 weeks
Self-reported quality of life rating scale comprising of 28 items in six categories: daily activities (by history), behavior, bulbar, ocular motor, limb motor and gait/midline. Scores range from 0 to 100, each item graded 0-2 (six items) or 0-4 (22 items). The lower the total score the better the quality of life.
次要结局
- PHQ-9 (Patient Health Questionnaire-9)(8-10 weeks)
- NPI (Neuropsychiatric Inventory)(8-10 weeks)
- Zarit Caregiver Burden Scale(8-10 weeks)