Dignity Therapy: A Psychotherapeutic Intervention to Enhance the End of Life Experience for Persons with Motor Neurone Disease and their Family Carers

Not Applicable

Completed

• Conditions: Motor Neurone Disease; Amyotrophic Lateral Sclerosis; Neurological - Neurodegenerative diseases

• Registration Number: ACTRN12611000410954
• Lead Sponsor: School of Psychology and Speech Pathology

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2011-04-20
• Last Update Posted: 13 January 2020

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 50

Inclusion Criteria

Persons diagnosed with MND/ALS able to provide informed consent and communicate in English. Family carers of persons diagnosed with MND who are accepted into the study and able to communicate in English.

Exclusion Criteria

Persons unable to communicate in English and/or provide informed consent due to cognitive issues or illness severity

Study & Design

• Study Type: Interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Hopefulness in persons with MND, as measured by the Herth Hope Index[One week post treatment];Perceived caregiver burden in MND family carers, as measured by the Zarit Burden Interview[One week post treatment]

Secondary Outcome Measures

Name	Time	Method
Spiritual wellbeing in persons with MND, as measured by the FACIT-sp[One week post treatment];Patient Dignity in persons with MND, as measured by the Patient Dignity Inventory[One week post treatment];Hopefulness in MND family carers, as measured by the Herth Hope Index[One week post treatment];Anxiety and depression in MND family carers, as measured by the Hospital Anxiety and Depression Scale[One week post treatment];Acceptability of Dignity Therapy to persons with MND and their family carers, as measured by the Dignity Therapy Feedback Questionairre.[One week post treatment]