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Survey on Epidemiology of Hypoparathyroidism in France

Recruiting
Conditions
Hypoparathyroidism
Interventions
Other: No intervention
Registration Number
NCT02838927
Lead Sponsor
European Georges Pompidou Hospital
Brief Summary

Very few data has been published on the epidemiology of hypoparathyroidism worldwide: none exists specifically for France. Hypoparathyroidism could led to complications. Here, the investigators plan to collect data about both epidemiology, medication and complication of hypoparathyroidism in France.

Detailed Description

Very few data has been published on the epidemiology of hypoparathyroidism worldwide. None exists specifically in France. Hypoparathyroidism could led to complications: e.g. symptomatic hypocalcemia, calcifications (brain, eye and other soft tissues), nephrolithiasis/nephrocalcinosis, renal insufficiency. Here,the investigators plan to collect data about both epidemiology, medication and complication of hypoparathyroidism in France.

Recruitment & Eligibility

Status
RECRUITING
Sex
All
Target Recruitment
1000
Inclusion Criteria
  • patient fro whom chronic hypoparathyroidism is diagnosed
  • patient living in France
Exclusion Criteria
  • patient who does not want his data to be collected in this registry
  • pseudo-hypoparathyroidism
  • acute hypoparathyroidism

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Arm && Interventions
GroupInterventionDescription
HypoparathyroidismNo interventionNo intervention.
Primary Outcome Measures
NameTimeMethod
Assessment of the epidemiology of patients with hypoparathyroidism in FranceThrough study completion, about 2 years

Data collected by questionnaire about etiology of hypoparathyroidism, filled by physicians from clinic folders

Secondary Outcome Measures
NameTimeMethod
Assessment of the biology (calcemia, calciuria, parathormone, creatininemia, phosphatemia & magnesemia) at diagnosis and drug therapy at inclusion will describe populationThrough study completion, about 2 years

Number of patients with at least one anomaly at biology (calcemia in mM, calciuria in mmol/j, parathormone in pg/ml, creatininemia in µM, phosphatemia in mM, vitamin D in nmol/l \& magnesemia in mM) at diagnosis

Assessment of the biology at inclusion will describe the evolution of the included population from diagnosis to now (inclusion)At inclusion (under treatment): through study completion, about 2 years

Number of patients with at least one anomaly at biology (calcemia in mM, calciuria in mmol/j, parathormone in pg/ml, creatininemia in µM, phosphatemia in mM, vitamin D in nmol/l \& magnesemia in mM) at inclusion

Assessment of the management at inclusion will describe treatment and complications at inclusionAt inclusion (under treatment): through study completion, about 2 years

Number of patients with clinical outcomes (complications such as cataract, nephrolithiasis, nephrocalcinosis, and others) and their management at inclusion

Trial Locations

Locations (54)

Blanquefort

🇫🇷

Blanquefort, France

Saint-Louis Hospital, AP-HP

🇫🇷

Paris, France

Passy Hospital

🇫🇷

Passy, France

Saint Florent Le Vieil

🇫🇷

Saint Florent Le Vieil, France

Felix Guyon Hospital

🇫🇷

Saint-Denis, La Réunion, France

Hôpital Privé de Provence

🇫🇷

Aix-en-Provence, France

Amiens University Hospital

🇫🇷

Amiens, France

Clinic Auch Area

🇫🇷

Auch, France

Henri Mondor Hospital

🇫🇷

Aurillac, France

Jean Minjoz Hospital

🇫🇷

Besançon, France

Avicenne Hospital, AP-HP

🇫🇷

Bobigny, France

Jean Verdier Hospital, AP-HP

🇫🇷

Bondy, France

University Hospital

🇫🇷

Nice, France

Bourgoin Jallieu Hospital

🇫🇷

Bourgoin-Jallieu, France

La Cavale Blanche Hospital

🇫🇷

Brest, France

Côte de Nacre Hospital

🇫🇷

Caen, France

Henri Mondor Hospital, APHP

🇫🇷

Créteil, France

Dax-Côte d'Argent Hospital

🇫🇷

Dax, France

Grenoble Alpes Hospital

🇫🇷

Grenoble, France

CHD Vendée

🇫🇷

La Roche-sur-Yon, France

Kremlin-Bicêtre Hospital, APHP

🇫🇷

Le Kremlin-Bicêtre, France

Le Mans Hospital

🇫🇷

Le Mans, France

Libourne Hospital

🇫🇷

Libourne, France

Claude Huriez Hospital

🇫🇷

Lille, France

Edouard Herriot Hospital, HCL

🇫🇷

Lyon, France

La Conception Hospital, AP-HM

🇫🇷

Marseille, France

Clinic Metz Area

🇫🇷

Metz, France

Mercy Hospital

🇫🇷

Metz, France

Arnaud de Villeneuve Hospital

🇫🇷

Montpellier, France

Clinic area

🇫🇷

Mérignac, France

Brabois Hospital

🇫🇷

Nancy, France

Georges Renon Hospital

🇫🇷

Niort, France

Caremeau Hospital

🇫🇷

Nîmes, France

European Georges Pompidou Hospital, APHP

🇫🇷

Paris, France

Clinic Paris Area

🇫🇷

Paris, France

Cochin Hospital, APHP

🇫🇷

Paris, France

Lariboisière Hospital, APHP

🇫🇷

Paris, France

Pitié-Salpêtrière Hospital, APHP

🇫🇷

Paris, France

Tenon Hospital, APHP

🇫🇷

Paris, France

Necker Hospital, AP-HP

🇫🇷

Paris, France

Clinic Poitiers Area

🇫🇷

Poitiers, France

Laennec Hospital

🇫🇷

Quimper, France

Reims University Hospital

🇫🇷

Reims, France

Clinic Rennes Area

🇫🇷

Rennes, France

Charles Nicolle Hospital

🇫🇷

Rouen, France

Clinic Area

🇫🇷

Saint-Junien, France

Clinique du Landy

🇫🇷

Saint-Ouen, France

Hautepierre Hospital

🇫🇷

Strasbourg, France

Sainte Anne Hospital, HIA

🇫🇷

Toulon, France

Larrey Hospital

🇫🇷

Toulouse, France

Guy Chatiliez Hospital

🇫🇷

Tourcoing, France

Bretonneau Hospital

🇫🇷

Tours, France

Valenciennes Hospital

🇫🇷

Valenciennes, France

CHIV - Lucie et Raymond Aubrac

🇫🇷

Villeneuve-Saint-Georges, France

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