Adolescent and Young Adult Cancer Survivors: Identity Development

Active, not recruiting

• Conditions: Cancer
• Interventions: Behavioral: interview; Behavioral: Focus groups; Behavioral: Questionnaire

• Registration Number: NCT00832325
• Lead Sponsor: Memorial Sloan Kettering Cancer Center

Brief Summary

The purpose of this study is to better understand how the illness has affected the identity and what needs the survivor may have. We hope that this information will help us provide better care to future adolescent and young adult cancer survivors.

Detailed Description

Not available

Study Timeline

• Study Start: 2009-01
• Study First Submitted: 2009-01-28
• Study First Submitted QC: 2009-01-29
• Study First Posted: 2009-01-30
• Status Verified: 2025-01
• Last Update Submitted: 2025-01-06
• Last Update Posted: 2025-01-07
• Primary Completion: 2026-01
• Study Completion: 2026-01

Recruitment & Eligibility

• Status: ACTIVE_NOT_RECRUITING
• Sex: All
• Target Recruitment: 300

Inclusion Criteria

• Current age greater than and including 15 and up to and including 25 years of age at time of consent
• Diagnosis of a first cancer > or = to 14 and up to and including 21 years of age
• At least 6 months post-treatment according to participant's self-report.
• Able to provide informed consent (or parent or legal guardian consent and participant assent for those participants under 18 years of age)
• Able to speak English. This inclusion criterion is included because study assessments were designed and validated in English and many of them are not currently available in other languages. Translation of questionnaires into other languages would require reestablishing the reliability and validity of these measures. Therefore, participants must be able to communicate in English to complete the assessments.

Exclusion Criteria

• Will exclude survivors with severe cognitive impairment that precludes them from being able to give information consent and/or complete the questionnaires.

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Arm && Interventions

Group	Intervention	Description
1 individual interviews	interview	The patient will be asked to come in to the Counseling Center at MSKCC (641 Lexington Avenue, 7th Floor) and participate in an individual interview at their convenience.
2 Focus Groups	Focus groups	The patient will be asked to come in to the Counseling Center at MSKCC (641 Lexington Avenue, 7th Floor) and participate in a focus group at their convenience.
3 Questionnaire	Questionnaire	The patient will be asked to participate in three 60-90 minute telephone interviews scheduled at their convenience.

Primary Outcome Measures

Name	Time	Method
Conduct a comprehensive qualitative assessment through individual interviews and focus groups of identity development, peer and family relationships, and psychosocial concerns among survivors diagnosed during adolescence.	3 years

Secondary Outcome Measures

Name	Time	Method
Conduct a prospective longitudinal assessment of identity development and peer and family relationships among survivors diagnosed during adolescence.	3 years

Trial Locations

Locations (1)

Memorial Sloan Kettering Cancer Center; 🇺🇸 New York, New York, United States