Adolescent and Young Adult Cancer Survivors: Identity Development
试验速览
- 阶段
- 不适用
- 状态
- 进行中（未招募）
- 入组人数
- 300
- 试验地点
- 1
- 主要终点
- Conduct a comprehensive qualitative assessment through individual interviews and focus groups of identity development, peer and family relationships, and psychosocial concerns among survivors diagnosed during adolescence.
研究概览
简要总结
The purpose of this study is to better understand how the illness has affected the identity and what needs the survivor may have. We hope that this information will help us provide better care to future adolescent and young adult cancer survivors.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 15 Years 至 25 Years（Child, Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Current age greater than and including 15 and up to and including 25 years of age at time of consent
- •Diagnosis of a first cancer > or = to 14 and up to and including 21 years of age
- •At least 6 months post-treatment according to participant's self-report.
- •Able to provide informed consent (or parent or legal guardian consent and participant assent for those participants under 18 years of age)
- •Able to speak English. This inclusion criterion is included because study assessments were designed and validated in English and many of them are not currently available in other languages. Translation of questionnaires into other languages would require reestablishing the reliability and validity of these measures. Therefore, participants must be able to communicate in English to complete the assessments.
排除标准
- •Will exclude survivors with severe cognitive impairment that precludes them from being able to give information consent and/or complete the questionnaires.
研究组 & 干预措施
1 individual interviews
The patient will be asked to come in to the Counseling Center at MSKCC (641 Lexington Avenue, 7th Floor) and participate in an individual interview at their convenience.
干预措施: interview (Behavioral)
2 Focus Groups
The patient will be asked to come in to the Counseling Center at MSKCC (641 Lexington Avenue, 7th Floor) and participate in a focus group at their convenience.
干预措施: Focus groups (Behavioral)
3 Questionnaire
The patient will be asked to participate in three 60-90 minute telephone interviews scheduled at their convenience.
干预措施: Questionnaire (Behavioral)
结局指标
主要结局
Conduct a comprehensive qualitative assessment through individual interviews and focus groups of identity development, peer and family relationships, and psychosocial concerns among survivors diagnosed during adolescence.
时间窗: 3 years
次要结局
- Conduct a prospective longitudinal assessment of identity development and peer and family relationships among survivors diagnosed during adolescence.(3 years)