ISRCTN74264887已完成未知
Improving the support for older people with learning disabilities and behaviours that challenge others, family and professional carers, and end of life care planning for carers
适应症
试验速览
- 阶段
- 未知
- 状态
- 已完成
- 入组人数
- 256
研究概览
简要总结
2024 Results article in https://pubmed.ncbi.nlm.nih.gov/38940476/ (added 01/07/2024)
研究设计
- 研究类型
- Observational
入排标准
- 性别
- All
入选标准
- •Current inclusion criteria as of 17/08/2022:
- •WP2 MAPPING AND SCOPING EXERCISE - one of the following:
- •1. NHSE regional lead for learning disabled and/or the lead for end of life care
- •2. Key staff from Sustainability and Transformation Partnerships
- •3. Commissioner of services
- •4. Key staff from service providers
- •5. Key staff from relevant voluntary organisations
- •6. Public or professional with an interest in services for older learning disabled people and support for older carers
- •WP3 ETHNOGRAPHY
- •9 case study sites demonstrating exemplars in one of 4 models of provision (independent supported living, residential services, family-/home-based support and daytime activities and services, and Shared Lives). Per site:
- •1. 4-6 people with learning disabilities
- •2. 4-6 carers
- •3. 4-5 support workers
- •4. 1-2 commissioners, service managers, or other relevant staff
- •1. People with learning disabilities (aged 40+) who live at home with an elderly parent who have some verbal ability and who are able to give informed consent
- •2. Parent carers with an adult child with learning disabilities (aged 40+) living in the family home
- •3. Siblings of people with learning disabilities (aged 40+) who live with elderly parents
- •4. Siblings (or close relatives) of people with learning disabilities who lived at home with at least 1 parent until the age of 35+, and whose home situation changed because either the parent(s) died or became too frail to care for them
- •Previous inclusion criteria:
- •WP2 MAPPING AND SCOPING EXERCISE - one of the following:
- •1. NHSE regional lead for learning disabled and/or the lead for end of life care
- •2. Key staff from Sustainability and Transformation Partnerships
- •3. Commissioner of services
- •4. Key staff from service providers
- •5. Key staff from relevant voluntary organisations
- •6. Public or professional with an interest in services for older learning disabled people and support for older carers
- •WP3 ETHNOGRAPHY
- •4 case study sites. In each:
- •1. 5-10 people with learning disabilities aged 40+
- •2. 5-8 carers
- •3. 4-5 support workers
- •4. 1-2 relevant commissioners and service managers
- •1. People with learning disabilities (aged 40+) who live at home with an elderly parent who have some verbal ability and who are able to give informed consent
- •2. Parent carers with an adult child with learning disabilities (aged 40+) living in the family home
- •3. Siblings of people with learning disabilities (aged 40+) who live with elderly parents
- •4. Siblings of people with learning disabilities (aged 40+) who had to leave the parental home following parental death within the past 3 years
排除标准
- •Does not meet inclusion criteria
研究者
相似试验
进行中（未招募）
Unknown
The clinical and cost effectiveness of a personalised living well support package on health-related quality of life in older people with knee and/or hip joint pain and at least one other long term health conditioKnee and hip osteoarthritisMusculoskeletal DiseasesISRCTN16024745Cardiff University824
已完成
不适用
Better outcomes for older people with spinal troubleeurogenic claudication, Spinal stenosisNervous System DiseasesNeurogenic claudication, Spinal stenosisISRCTN12698674Oxford University Hospitals NHS Foundation Trust435
已完成
不适用
Reablement Intervention for Older Adults Conducted by a Multi Professional Home Rehabilitation TeamRehabilitation by Recovery of FunctionNCT03565614Mälardalen University240
已完成
不适用
Improving end of life in care homes using an implementation science approachHealth services research, care homes, end of life careISRCTN15863801niversity of Stirling349
已完成
不适用
A New Model to Reach Vulnerable Older Adults With Pain Self-management SupportChronic PainNCT04095650University of Michigan38