MedPath

A mixed methods trial of a family-based, parent-led intervention to improve resilience and wellbeing of families living with a childhood chronic illness.

Not Applicable
Recruiting
Conditions
Mental health
Family resilience
Chronic illness
Mental Health - Studies of normal psychology, cognitive function and behaviour
Public Health - Health promotion/education
Registration Number
ACTRN12613000844741
Lead Sponsor
Hunter New England Local Health District / Hunter Institute of Mental Health
Brief Summary

Not available

Detailed Description

Not available

Recruitment & Eligibility

Status
Recruiting
Sex
All
Target Recruitment
353
Inclusion Criteria

Step 1: Routine dissemination group.
Step 1 of the project involves all parents/carers of children and young people who are discharged from the paediatric hospital. While the pilot aims to promote family resilience and well-being in families who have a child/young person living with chronic illness, this level of the pilot aims to provide broader benefit to all families visiting the hospital by facilitating access to mental health promotion and prevention information to all families regardless of the child or young person's diagnosis.

Step 2: Targeted Dissemination group.
Step 2 of the project involves consenting parents/carers whose child/young person is attending one of the four selected outpatient clinics at the paediatric hospital (Gastroenterology, Cystic Fibrosis, Diabetes and Rheumatology).

Step 3: Active dissemination phase.
Step 3of the project involves consenting parents/carers whose child/young person is attending one of the four selected outpatient clinics at the paediatric hospital (Gastroenterology, Cystic Fibrosis, Diabetes and Rheumatology), and who score mild, moderate or severe psychological distress according to standard clinical cut off scores on the Kessler Psychological Distress (K10) Scale.

Exclusion Criteria

Step 1: Routine dissemination (Fact Sheet Intervention). Children and young people under the age of 18 years.

Step 2: Targeted dissemination (Booklet Intervention).
Children and young people under the age of 18 years.

Step 3: Active dissemination (Information Support Group Intervention).
Children and young people under the age of 18 years AND parents/carers who score <15 on the Kessler Psychological Distress (K10) Scale.

Study & Design

Study Type
Interventional
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
Secondary Outcome Measures
NameTimeMethod
© Copyright 2025. All Rights Reserved by MedPath