What is the Day-to-day Experience of Parents/Carers of Children or Adolescents With Severe Motor Disabilities Suffering From Spinal Pain?
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 13
- 试验地点
- 1
- 主要终点
- Individual interviews
研究概览
简要总结
Parents of disabled children suffer from back pain more frequently than the general population. At present, the literature does not identify any specific factors responsible for this suffering.
For patients suffering from chronic back pain, there are specific treatment programmes in the Physical Medicine and Rehabilitation Department, with a focus on pain management.
The investigators would like to develop specific programmes for parents/carers of children/adolescents with severe motor disabilities.
To achieve this, it is important to gain a better understanding of the factors that contribute to the onset of pain.
With this in mind, the investigators are conducting a qualitative study to gain a better understanding of the day-to-day lives of these parents.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —(Adult, Older Adult)
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Parents or carers of children with severe motor disabilities complaining of spinal pain
排除标准
- •Parent/carer refusing to participate
结局指标
主要结局
Individual interviews
时间窗: baseline
To understand the lived experience of parents/carers during the daily care of their child by means of a phenomenological analysis of the interviews
次要结局
未报告次要终点
