ACTRN12624000218594
Recruiting
未知
Assessing the impact of the Enhanced Advance care planning and life Review Longitudinal Intervention Community Outreach (EARLI-comm) program on advance care planning engagement
Overview
- Phase
- 未知
- Intervention
- Not specified
- Conditions
- Not specified
- Sponsor
- niversity of New South Wales
- Enrollment
- 120
- Status
- Recruiting
- Last Updated
- last year
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •The inclusion criteria for participants are:
- •1\. Belonging to one of the three eligible study populations:
- •a) aged 45 years or older and diagnosed with a progressive (life\-limiting) neurological condition (dementia, Parkinson's disease, Huntington's disease, Motor Neurone disease or mitochondrial disease); or
- •b) aged 45 years or older and diagnosed with Human Immunodeficiency Virus (HIV); or
- •c) aged 65 years or older and scoring between 3 and 7 on the Rockwood Clinical Frailty Scale
- •d) to avoid ambiguity, a person with a cancer\-related diagnosis who also meets criteria 1a, 1b or 1c (and does not meet exclusion criteria 5\) will be eligible;
- •2\. Living in a private residence in Western Australia or New South Wales (own or rented dwelling, including retirement village or other co\-operative housing, but NOT a residential aged care facility);
- •3\. Able to communicate in English, Italian, or Chinese (Mandarin or Cantonese);
- •4\. (if self\-referred) Able and agree to visit one of the approved study sites to undertake screening assessment, written informed consent and baseline data collection in person;
- •5\. Capable of providing informed consent at initial recruitment and answering baseline questions (successfully completing at least 75% of baseline questions.
Exclusion Criteria
- •The exclusion criteria for participants are:
- •1\. Unable to or refuse to nominate a general practitioner, treating medical specialist or care navigator for liaison with the study team;
- •2\. The participant's nominated general practitioner, treating medical specialist or care navigator expresses significant concern about participant or research team safety (either for the participant or for the facilitator) which cannot be appropriately managed (e.g. via use of personal protective equipment and physical distancing, or use of video\-conferencing;
- •3\. A baseline cognitive assessment indicates greater than moderate level of cognitive impairment (Telephone Montreal Cognitive Assessment Score \<8\);
- •4\. (only for older adults experiencing frailty study population) A baseline assessment on the Clinical Frailty Scale (CFS) indicates a complete absence of frailty (CFS score \<3\) or greater than severe frailty (CFS score \>7\);
- •5\. It becomes known that the person is expected to die within 'days or weeks' (based on information provided by a care provider, care navigator, treating medical specialist and/or participant's general practitioner during recruitment process \[i.e. between the time of referral and up until the completion of the informed consent process and follow up with care navigator/doctor].
Outcomes
Primary Outcomes
Not specified
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