ISRCTN14289653进行中（未招募）Unknown
The lived experience of people with von Willebrand disease: a mixed methods study
Haemnet0 个研究点目标入组 530 人开始时间: 2023年8月24日最近更新:
适应症
试验速览
- 阶段
- Unknown
- 状态
- 进行中（未招募）
- 发起方
- 入组人数
- 530
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 性别
- All
入选标准
- •1. Adults aged 16 years and above (UK and Ireland) and adults aged over 18 years (in USA) with a confirmed diagnosis of inherited vWD of known diagnostic subtype and vWF level.
- •2. For the qualitative interview-based substudy, 30 adults who have completed the survey and who wish to be interviewed will be purposively selected for a broad range of ages and diagnostic subtype.
- •3. For the bleed diary substudy, 50 adults who have completed the survey and who wish to take part will be purposively selected for a broad range of ages and diagnostic subtype.
排除标准
- •1. Have acquired vWD
- •2. Have other inherited bleeding disorders
- •3. Do not wish to participate in or to consent to the study.
- •4. Are under 16 years old (UK & Ireland) or 18 years old (US).
- •5. Those for whom written/spoken English would prohibit participation will also be excluded.
研究者
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