NCI Community Cancer Center Pilot Program Patient Survey
Trial Snapshot
- Phase
- Not Applicable
- Status
- Completed
- Enrollment
- 3,955
- Locations
- 1
- Primary Endpoint
- Evaluation of NCCCP Pilot Program
Study Overview
Brief Summary
Background:
- Studies suggest that cancer patients diagnosed and treated in a facility with multi-specialty care and clinical research may live longer and have a better quality of life than patients treated elsewhere.
- The NCI Community Cancer Centers Pilot Program (NCCCP) is a 3-year program to test the concept of a national network of community cancer centers to expand cancer research and deliver the most advanced cancer care to Americans in their own communities.
- The pilot program includes a survey of cancer patients receiving care at the pilot sites.
Objectives:
- To gain an understanding of the experiences of adult patients who receive services at the NCCCP pilot sites and assess if and how their experience changes over the study period. Data about the following are collected:
- Patients information needs and awareness of the NCCCP program
- Clinical trials experience
- Access to health care
- Perspectives on patient-provider communication
- Experiences with patient navigation, self-management, medical decision-making and survivorship
- Satisfaction with care and quality of life
Eligibility:
- Patients 21 years or older at the time of diagnosis
- Treatment at the cancer center for at least 3 months since July 1, 2007
Design:
- Participants complete a 25-minute questionnaire covering the care they received at their cancer center, their experience with making medical appointments and how long they waited to see the doctor. The survey includes information on the following:
- Services at the cancer center
- Getting needed care
- Assistance for patients and their families
- Communication with the cancer care team
- Clinical trials
- Care after finishing treatment
- Evaluation of care
- Health and medical history
- Background information (demographics)
Detailed Description
BACKGROUND:
The NCI Community Cancer Centers Pilot Program (NCCCP), http://ncccp.cancer.gov, is a three-year pilot program to test the concept of a national network of community cancer centers to expand cancer research and deliver the latest, most advanced cancer care to a greater number of Americans in the communities in which they live.The pilot program is designed to encourage the collaboration of private-practice medical, surgical, and radiation oncologists, with close links to NCI research and to the network of 63 NCI-designated cancer Centers principally based at large research universities. NCI contracted with RTI International (ww.rti.org) to conduct a comprehensive evaluation of the NCCCP pilot program using multiple methodologies, including a survey of cancer patients receiving care at the pilot sites.
OBJECTIVES:
The goal of the patient survey is to gain an understanding of the clinical experiences of adult patients who receive services at the NCCCP pilot sites and to assess if and how their experience change over the pilot period. Specifically, the survey instrument seeks to collect data about patients information needs and awareness of the NCCCP program; clinical trials experience; access to health care; perspectives on patient-provider communication; and experiences with patient navigation, self-management, medical decision making, and survivorship; as well as their satisfaction with care and quality of life.
ELIGIBILITY:
Study Design
- Study Type
- Observational
- Observational Model
- Other
- Time Perspective
- Cross Sectional
Eligibility Criteria
- Ages
- 21 Years to 99 Years (Adult, Older Adult)
- Sex
- All
- Accepts Healthy Volunteers
- Yes
Inclusion Criteria
- Not provided
Exclusion Criteria
- Not provided
Outcomes
Primary Outcomes
Evaluation of NCCCP Pilot Program
Secondary Outcomes
- Gain an understanding of the patients' perspective on the NCCCP Pilot Program and to assess how well health care and informational needs are being met.