iving well with long term neurological conditions: The living well toolkit

Not Applicable

• Conditions: long term neurological conditions; Neurological - Other neurological disorders

• Registration Number: ACTRN12614000537651
• Lead Sponsor: AUT University

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2014-05-21
• Last Update Posted: 13 January 2020

Recruitment & Eligibility

• Status: Stopped early
• Sex: All
• Target Recruitment: 45

Inclusion Criteria

We have 3 participant groups:
1) people living with a long-term neurological condition
- at the point where they are close to discharge or transitioning into another service
- older than 18 years ( adults able to consent)
2)nominated family/ carers/ support staff, older than 18 years and able to consent, and being a significant other or support person involved in the care of the person living with a neurological condition
3) health care providers such as nurses, physio's, OT's, SLT', social workers, key workers etc. involved in the care of people living with a neurological condition.

Exclusion Criteria

not able to give consent
not 18 years of age
not having a long-term neurological condition (patient participants)
not having the cognitive capacity to express their thoughts on the experience of using the toolkit (patient participants)

Study & Design

• Study Type: Interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
qualitative study - feedback on value and usability will be sought through semi-structured interviews.<br>The interviews are with participating health professionals by means of a one-off locality focus group or individual face to face interview (if more practical or preferred). We will also seek feedback from people living with a neurological condition and their family (together) by means of a face to face interview. And we will seek feedback on the usability of the toolkit from nominated and consenting carers / support workers via a one-off phone interview.[1 week post intervention ]

Secondary Outcome Measures

Name	Time	Method
Face to face interviews with participating people living with a neurological condition and their family will be held to further evaluate the toolkit's value and use in the longer term[A 3 month follow- up ]