German Celiac Registry
Recruiting
- Conditions
- K90.0Coeliac disease
- Registration Number
- DRKS00017385
- Lead Sponsor
- c/o Kompetenznetz Darmerkrankungen e. V.
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- All
- Target Recruitment
- 3000
Inclusion Criteria
1. diagnosed celiac disease (self-reported and if possible verified by attending physician)
2. signed informed declaration of consent (in the case of minors, additionally signed declaration of consent of the custodian)
Exclusion Criteria
1. missing declaration of declaration of consent prior to documentation
2. Revocation of the declaration of consent
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Baseline and follow-up documentation of celiac disease patients in Germany through an online register with a special focus on the care situation with delayed diagnosis, sufficient diagnostic and therapeutic processing, dietary behaviour, quality of life and psychosocial impairment.
- Secondary Outcome Measures
Name Time Method