Effect of discharge program in preparedness and uncertainty of family members
- Conditions
- Hematopoietic cell transplantation (HSCT) Diseases of the blood and blood-forming organs and certain disorders involving the immune mechanismPreparednesUncertaintyDistressFamily CaregiverHematopoietic stem-cell transplantationBone Marrow Transplantation
- Registration Number
- TCTR20210831001
- Lead Sponsor
- Dr Mohamad Ali Sahraeiyan
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Pending (Not yet recruiting)
- Sex
- All
- Target Recruitment
- 120
family member age over 18 years old
Caring for the patient at home
Ability to speak, read and write in Persian
Having a smartphone and access to the Internet and social media
Age range 18 to 60 years for Patients undergoing HSCT
Patient undergoing HSCT for any reason (leukemia, lymphoma, immune problems, etc.)
Patient undergoing HSCT (allogeneic or autologous)
Hospitalization of patients under HSCT in adult wards
Having at least two family members involved in patient care at home
Having a distinct mental illness of a family caregiver
Recent critical events such as the loss of loved ones and divorce
Caring for another person in the family due to an underlying illness
Addiction of a family member based on self-declaration
Withdrawal of Participants from the study
Long-term hospitalization of patients (more than one month)
Transplant rejection
Death of the patient
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Family caregivers' preparedness Before the intervention and after the intervention The Preparedness for Caregiving Scale (CPS) , Uncertainty Before the intervention and after the intervention Uncertainty in Illness Scale-Family Member form (PPUS-FM)
- Secondary Outcome Measures
Name Time Method Distress Score Before the intervention and after the intervention Distress Thermometer (DT)