nderstanding the Falls Experience in People with Intellectual Disability in Western Australia

Not Applicable

Completed

• Conditions: Fragile X; Tuberous Sclerosis; Angleman Syndrome; Human Genetics and Inherited Disorders - Other human genetics and inherited disorders; Intellectual Disability; Cerebral Palsy; Injuries and Accidents - Other injuries and accidents; Musculoskeletal - Other muscular and skeletal disorders; Down Syndrome; Autism

• Registration Number: ACTRN12615000926538
• Lead Sponsor: The University of Notre Dame Australia

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2015-09-07
• Last Update Posted: 13 January 2020

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 90

Inclusion Criteria

Primary or secondary diagnosis of intellectual disability, age 35 years and older, live in the community

Exclusion Criteria

Only physical ability is to move head and facial muscles with no other involuntary muscle activity eg muscle spasms
Live in residential care facility
Unable to understand English

Study & Design

• Study Type: Observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Rate of falls[6 months from start of trial. <br>Rate of falls will be assessed with a diary provided to participants and a monthly phone calls for 6 months after enrolment]

Secondary Outcome Measures

Name	Time	Method
Post-fall experience[Measured with a face to face interview with a participant and/or their caregiver(s) after a fall to gather qualitative information about what they experienced after the fall such as the care support they received or was offered to them, what services did they access, what activities did they engage to prevent the next fall, did they experience any post-fall related fears, do they perceive any barriers in engaging in falls prevention recommendtations ];Rate of injurious falls[A fall is classified as injurious if a participant reports a physical injury as a result of the fall. This is measured with diary collection and phone call for each participant fall.];Associated Risk factors for falls[Measured by demographic data gathered at baseline of age, gender, level of mobility, amount of assistance received at home, BMI and employment status]