THE ILLNESS EXPERIENCE OF WOMEN WITH INTERSTITIAL CYSTITIS (IC)/ BLADDER PAIN SYNDROME (BPS) – VIEW AND EXPERIENCE OF PATIENTS AND THEIR RELATIVES: A QUALITATIVE INVESTIGATIO

Recruiting

• Conditions: N30.1; Interstitial cystitis (chronic)

• Registration Number: DRKS00032071
• Lead Sponsor: Private Universität im Fürstentum Liechtenstein (UFL)

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2023-07-25
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 30

Inclusion Criteria

Women of all ages, but at least 18 years old. The diagnosis of IC/BPS has been confirmed. Good ability to speak and understand the
German language.

Relatives of women with IC/BPS of all ages,
but at least 18 years old. Good ability to speak and understand the German language.

Exclusion Criteria

Other pelvic floor dysfunctions that may additionally significantly influence the experience of the disease. These include pelvic organ prolapse (POP), urinary incontinence unrelated to IC/BPS, faecal incontinence, chronic pelvic pain unrelated to IC/BPS, sexual dysfunction unrelated to IC/BPS.

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
To explore and to reconstruct the illness experience of women with IC/BPS and their relatives.

Secondary Outcome Measures

Name	Time	Method
To explore and to reconstruct the views, perceptions, experiences, facilitations as well as barriers of women with IC/BPS for symptom management in everyday life and the experiences and views of their relatives.