Caring for the dying at home: can lay carers safely give extra, as-needed, symptom control to their loved ones using injections under the skin?

Not Applicable

Completed

• Conditions: End of life care; Not Applicable

• Registration Number: ISRCTN11211024
• Lead Sponsor: Bangor University

Brief Summary

2019 Protocol article in https://www.ncbi.nlm.nih.gov/pubmed/30732624 protocol 2020 Results article in https://pubmed.ncbi.nlm.nih.gov/32484432/ (added 28/10/2022)

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2016-09-27
• Study Completion: 2019-09-30
• Last Update Posted: 7 November 2022

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 40

Inclusion Criteria

1. Dyads of dying patients and their home-based carers
2. Adult patients in the last weeks of life
3. Who are likely to use the oral route for medication
4. Have expressed a preference to die at home
5. Have a family carer who is over 18
6. Carer is willing to have this extended role
7. Carer is willing to have subcutaneous injection training

Exclusion Criteria

1. Patient or carer is under 18
2. Patient or carer not willing to entertain concept of lay carer administering subcutaneous medication
3. Patient or carer has a known history of substance abuse
4. Patient has had previous known adverse reactions to substance meds
5. Clinician judges that risk assessment criteria are not met for a dyad

Study & Design

• Study Type: Interventional
• Study Design: Not specified