Patient and Family Health Literacy - a Survey Among 5000 People
Trial Snapshot
- Phase
- Not Applicable
- Status
- Completed
- Enrollment
- 4,611
- Locations
- 1
- Primary Endpoint
- Health Literacy Questionnaire (HLQ)
Study Overview
Brief Summary
This study aims to identify health literacy strengths and needs among people living with type 2 diabetes and multi-disease and their family members.
Detailed Description
Living with diabetes and multi-disease affects not only the individual but also the social network around the person, as self-management is dependent on the ability to change one's lifestyle and manage the consequences of disease. In other words, health literacy strengths and needs of the individual and family members are determinants of how people manage living with type 2 diabetes. Thus, we hypothesise that diabetes management is influenced by the patient's and family members' health literacy. Knowledge about their health literacy could further enhance a patient- and family-centred approach to diabetes treatment and care, improving self-management and promoting health.
Study Design
- Study Type
- Observational
- Observational Model
- Family Based
- Time Perspective
- Cross Sectional
Eligibility Criteria
- Ages
- 18 Years to — (Adult, Older Adult)
- Sex
- All
- Accepts Healthy Volunteers
- No
Inclusion Criteria
- •living with Type 2 diabetes and multi-disease
- •cognitively able to participate
- •following an outpatient care program
Exclusion Criteria
- •patients in palliative care
- •inability to read or speak Danish
Outcomes
Primary Outcomes
Health Literacy Questionnaire (HLQ)
Time Frame: At Enrollment
The Health Literacy Questionnaire (HLQ) is a 44-item validated questionnaire on health literacy. It consists of two parts, one part with 23 questions answered with a 4-point Likert Scale (strongly disagree = 1, disagree = 2, agree = 3, and strongly agree = 4). The second part has 21 questions answered with a 5-point Likert Scale (can't do/always difficult = 1, usually difficult = 2, sometimes difficult = 3, usually easy = 4, always easy = 5). The patient must select one of the scales for each of the 44 questions. The answers are self-reported via REDCap, one time after the survey is distributed.
Secondary Outcomes
No secondary outcomes reported