The iParent2Parent Program: Peer Mentoring for Parents of Children With Juvenile Idiopathic Arthritis
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 6
- 试验地点
- 4
- 主要终点
- Trial feasibility of iParent2Parent program
研究概览
简要总结
The iParent2Parent program matches parents of children living with arthritis with a trained parent mentor who will provide parents of children newly diagnosed with arthritis: practical coping advice and social support through shared lived experiences. This study will compare two groups of parents: those who are in the iParent2Parent program and those in the control group (no mentor).
详细描述
Parents/primary caregiver of children with JIA are an often overlooked but essential member of their child's health care team. They are responsible for managing their child's treatment program, and act as advocates for their child to support positive adaptation to JIA and to learn self-management skills for the disease. This is in the context of managing the financial, logistical, emotional, and social demands of parenting in general. Within pediatric tertiary care centres, peer-support programs for parents of children with JIA are often limited or difficult to access. The iParent2Parent Program aims to fill this gap in services by offering a program of trained parent peer mentors who can provide practical coping advice, foster adaptive problem solving, and provide social support via shared lived experience.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Parallel
- 主要目的
- Treatment
- 盲法
- Single (Investigator)
入排标准
- 年龄范围
- 18 Years 至 100 Years（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •English speaking caregiver of a child diagnosed with JIA according to ILAR criteria prior to their 18th birthday
- •Access to computer capable of using free Skype software
排除标准
- •Significant cognitive impairment or major co-morbid illness of parent that impeded ability to engage in program (e.g.; psychosis, active suicidal ideation, cognitive delays that would impact ability to participate and complete questionnaires.)
结局指标
主要结局
Trial feasibility of iParent2Parent program
时间窗: At study completion; an average of 2 years
Criteria for feasibility are based on studies previously conducted by our group and will be: accrual rate of \>70 percent, attrition rate of \<15percent, technical difficulties reported by \<10 percent of parents and mentors, adherence rate of \>80 percent, \<5 percent missed responses on outcome measures and high acceptability (based on qualitative analyses). Data related to the primary outcome will be recorded on investigator-developed forms.
次要结局
- PROMIS Adult Profile 25(baseline; up to 12 weeks after baseline, 6 months post program)
- Short form version of the PROMIS(baseline; up to 12 weeks after baseline, 6 months post program)
- Coping Health Inventory for Parents(baseline; up to 12 weeks after baseline, 6 months post program)
- Parental Stress Scale(baseline; up to 12 weeks after baseline, 6 months post program)
研究者
Sara Ahola Kohut
Psychologist
The Hospital for Sick Children