NCT04965558招募中不适用
Clinical Features and Outcome in Patients With Osseomuscular Type of Wilson's Disease
Second Affiliated Hospital, School of Medicine, Zhejiang University1 个研究点 分布在 1 个国家目标入组 1,000 人开始时间: 2004年1月1日最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 发起方
- 入组人数
- 1,000
- 试验地点
- 1
- 主要终点
- Serum ceruloplasmin
研究概览
简要总结
The investigators aimed to observe the clinical features and outcome in patients with osseomuscular type of Wilson's disease from a large cohort during long-term follow-up
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Retrospective
入排标准
- 年龄范围
- 6 Years 至 65 Years（Child, Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •genetically diagnosed WD patients
排除标准
- •Deny follow-up
结局指标
主要结局
Serum ceruloplasmin
时间窗: From 2004 through 2030
Serum ceruloplasmin levels were collected among patients with wilson disease. After confirming a non-Gaussian distribution, the reference range of serum ceruloplasmin level was determined.
Urinary Copper Excretion
时间窗: From 2004 through 2030
The measurement of 24-hour urine copper excretions were collected and measured.
次要结局
未报告次要终点
研究者
研究点 (1)
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