Self-compassion and Quality of Life After Dementia Diagnosis
- Conditions
- Dementia
- Registration Number
- NCT06465173
- Lead Sponsor
- Oxford Health NHS Foundation Trust
- Brief Summary
This study aims to investigate whether self-compassion is associated with older adult's quality of life after a diagnosis of dementia, and whether perceived threat posed by dementia mediates this relationship. Self-compassion has been found to be positive in supporting individuals in times of difficulty, in adjustment processes and older adults' wellbeing. While different factors have begun to be identified which are associated with individuals' psychological wellbeing and adjustment following a dementia diagnosis, little is known about the influence of self-compassion.
Participants will be recruited via NHS memory clinics, Join Dementia Research and from the community via third-sector organisations. Individuals will be invited to attend a Microsoft Teams/telephone appointment in which informed consent and cognitive screening processes will take place at the start. Eligible participants will then be invited to continue to complete measures administered by a researcher and an interview question. Participants will be offered the opportunity to complete the measures in a second session (within 8 weeks) or using the online survey software, Qualtrics, if preferred.
A small pilot study (n = 5) will take place prior to the main study.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- RECRUITING
- Sex
- All
- Target Recruitment
- 23
- An older adult aged ≥ 65 years
- A confirmed diagnosis of dementia received within the past 12 months
- They have knowledge of their diagnosis
- They have English language proficiency
- They have capacity to give informed consent to participation.
- They are deemed to lack capacity to give informed consent to participate (as per the Mental Capacity Act, 2005).
- They have a diagnosis of early-onset dementia, defined as individuals who are aged < 65 at diagnosis
- A score on the MoCA Blind (Nasreddine, 2022b) screening measure of <7 out of 22, which is calculated as equivalent to <10 out of 30 on the MoCA (Nasreddine et al., 2005).
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Quality of Life in Alzheimer's Disease (Logsdon et al., 1999) Through study completion, average 40-60 minutes The Quality of Life in Alzheimer's Disease (Logsdon et al., 1999) consists of 13 items relating to different aspects of quality of life, such as mood, physical health, friends and ability to do things for fun. Each item is scored from 1 ('poor') to 4 ('excellent') to calculate a total score (Logsdon et al., 1999).
- Secondary Outcome Measures
Name Time Method Stress Appraisal Measure (Peacock and Wong, 1990) Through study completion, average 40-60 minutes The Stress Appraisal Measure (Peacock \& Wong, 1990) consists of 28 items pertaining to perceived future threat, measured across seven subscales; three referring to primary appraisals of threat, centrality and challenge, three relating to secondary appraisal - controllable by self, controllable by others and uncontrollable), and stressfulness. Only the threat and 'stressfulness' subscales, consisting of four items respectively, will be completed.
Geriatric Depression Scale - 10 (van Marwijk et al., 1995) Through study completion, average 40-60 minutes The Geriatric Depression Scale - 10 (Van Marwijk et al., 1995), consisting of 10 items relating to how the person has felt over the past week (e.g. 'do you feel happy most of the time?'), has good reliability (α = 0.75), sensitivity and specificity (Almeida \& Almeida, 1999). The Geriatric Depression Scale -10 is considered a reliable screening measure for major depression in older adults (Almeida \& Almeida, 1999).
Trial Locations
- Locations (1)
Oxford Health NHS Foundation Trust
🇬🇧Oxford, Oxfordshire, United Kingdom