Access to Timely Formal care

Completed

• Conditions: Dementia; memory disorders; 10012272

• Registration Number: NL-OMON47170
• Lead Sponsor: niversiteit Maastricht

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Last Update Posted: 23 April 2024

Recruitment & Eligibility

• Status: Completed
• Sex: Not specified
• Target Recruitment: 50

Inclusion Criteria

(1) The patient has a diagnosis of dementia meeting DSM IV TR criteria following an assessment by a clinical professional.
(2) The person with dementia has a Clinical Dementia Rating indicating mild or moderate degree of dementia (i.e. scores 1 or 2) and scores 24 or less on the MMSE. (Note: overall in each country the intention is that the sample should comprise 50% people with CDR of 2).
(3) The patient is not receiving regular assistance from a paid worker with personal care, on account of his/her dementia, such as help with dressing/undressing; washing/ bathing/ showering; toileting; feeding/drinking; taking medication. (Note: *regular* is defined as at least once per week; *paid worker* includes those paid by health and social care services and those paid direct by the person and his/her family).
(4) A professional judges that additional assistance with personal care is likely to be considered / required within one year.
(Note: The concept of need for additional assistance is rather ambiguous, and a subjective risk estimate will be used to assess this need. This estimation will be made by any health care professional who is involved in the care of the patient and is in a position to judge the level of care needed. This will include multiple sources, including psychologists, general practitioners, memory clinic staff members, and other health care or social care professionals.
(5) The person with dementia has a carer who is able and willing to participate also and is in contact at least once per week. The carer does not have to be residing with the carer, they could be a relative, friend or neighbour in regular contact.
(6) The person with dementia and their carer consent to participate.
(7) The person with dementia is competent to participate in the current study

Exclusion Criteria

(1) The person with dementia has no identified carer in regular contact.
(2) The person with dementia or their carer is not able to complete the assessments due to communication/ language/ hearing/ understanding/ literacy problems that cannot be compensated for.
(3) The person with dementia or their carer has a terminal condition or comorbidities (including long-standing severe mental illness) contributing to a significant level of disability.
(4) The person with dementia or their carer has a life-long learning disability or severe physical impairment that would prevent them from being able to complete the assessments.
(5) The person with dementia resides in a care home or nursing home or has been resident in a care home or nursing home (e.g. for respite) during the previous six months.
(6) The person with dementia has a diagnosis of alcohol-related dementia or of Huntington*s disease.

Study & Design

• Study Type: Observational non invasive
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>Service use (measured by means of the RUD, Resource Utilization in Dementia)<br /><br>Needs (measured with the CANE, Camberwell Assessment of Needs in the Elderly)</p><br>