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Clinical Trials/JPRN-UMIN000038674
JPRN-UMIN000038674
Completed
未知

An observational study of health-related quality of life (HRQOL) in patients with inborn errors of metabolism - IEM-QO

Public Health Research Foundation0 sites165 target enrollmentNovember 25, 2019

Overview

Phase
未知
Intervention
Not specified
Conditions
Inborn errors of metabolism
Sponsor
Public Health Research Foundation
Enrollment
165
Status
Completed
Last Updated
2 years ago

Overview

Brief Summary

No summary available.

Registry
who.int
Start Date
November 25, 2019
End Date
March 31, 2021
Last Updated
2 years ago
Study Type
Observational
Sex
All

Investigators

Eligibility Criteria

Inclusion Criteria

  • Not provided

Exclusion Criteria

  • 1\. Patients judged by the physician to be inappropriate for registration in this study. 2\. Patients unable to comprehend consent form or give consent for themselves except in the case of proxy consent by caregiver.

Outcomes

Primary Outcomes

Not specified

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